Hep B Blog

Tag Archives: Rare Diseases Day

Slaying the Fibrolamellar Beast

 

Fibrolamellar Chimera- Slay the Beast
The chimera mutation is common to all fibrolamellar tissue. The mythological chimera is part lion, part goat, and part serpent. Original Chimera illustration by Jessica Guercia Design by Deborah Corrigan Visual Arts | DeborahCorriganVA.com.

February 28 is Rare Disease Day.

Last year, we featured the story of Gail Trecosta, who described how her teenage son Matthew was bravely battling a rare form of liver cancer called fibrolamellar hepatocellular carcinoma (FHC).

This year we are featuring FHC again but with a renewed sense of urgency and purpose.  Continue reading "Slaying the Fibrolamellar Beast"

Fighting FHC: A Family’s Battle Against a Rare Liver Cancer

In recognition of Rare Diseases Day today, Liver Cancer Connect is honored to feature an article by guest blogger, Gail Trecosta. Gail’s son is fighting a rare form of liver cancer.

MatthewWe’ve all heard or seen heartbreaking stories of children with cancer. Ours began in October 2012. Our world turned upside down when our 13-year-old son was diagnosed with fibrolamellar hepatocellular carcinoma (FHC).

Continue reading "Fighting FHC: A Family’s Battle Against a Rare Liver Cancer"