Hepatitis B Foundation awarded funding for a project to amplify voices of people living with hepatitis B
Doylestown, Pa., July 2, 2025 – The Hepatitis B Foundation is pleased to announce that it has been approved for a funding award through the Eugene Washington PCORI Engagement Award Program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI).
The funds will support centering patients’ experiences and fostering a safe space for effective stakeholder engagement in hepatitis B.
Yasmin Ibrahim, MD, PhD, MBA, senior public health program director at the Hepatitis B Foundation, will lead the engagement project. The funding will support an initiative to amplify patients’ voices and integrate their input into the development of hepatitis B therapeutics and clinical research, through identifying key patient-prioritized research questions that can be addressed through patient-centered comparative effectiveness research (CER) and developing a comprehensive and structured patient-centered CER agenda, informed by diverse perspectives. This work will serve as a guiding framework for shaping future research efforts aimed at addressing some of the most persistent challenges in diagnosing, preventing and managing hepatitis B.
This innovative project, “Improving Capacity for Patient-Centered CER To Address Hepatitis B,” aims to enhance the hepatitis B community’s ability to engage in patient-centered CER. Through this initiative, the Hepatitis B Foundation will convene a national multi-stakeholder consortium that includes people with lived experience, clinicians, researchers, payors, federal agencies and community-based organizations, and other relevant stakeholders. By elevating the lived experiences and preferences of people living with hepatitis B, this new project will help guide research priorities to improve patient-centered care in the hepatitis B community.
“This is an exciting opportunity,” Dr. Ibrahim said. “We’ve worked closely in recent years with stakeholders to help ensure that the voices of people living with hepatitis B are incorporated into drug development and clinical care. This award will help us solidify those efforts, bring new voices to the table and advance our work in a more structured and impactful way.”
PCORI is a nonprofit organization with a mission to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information that is needed to make better-informed health care decisions.
The project, “Improving Capacity for Patient-Centered CER To Address Hepatitis B,” is part of a portfolio of projects funded by PCORI to help develop a community of patients, caregivers, clinicians and other stakeholders who are better equipped to engage as partners in all phases of patient-centered comparative clinical effectiveness research (CER) and to disseminate results of PCORI-funded studies.
Through its Engagement Award Program, PCORI is creating an expansive network of individuals, communities and organizations who can leverage their lived experience and expertise to influence research to be more patient-centered, relevant and useful.
About the Hepatitis B Foundation: As the world’s leading hepatitis B advocacy and research organization, the Hepatitis B Foundation is one of the most active proponents of improving hepatitis B screening, prevention and treatment of the disease. The Foundation is the only nonprofit organization dedicated solely to finding a cure for hepatitis B and improving the quality of life for those affected worldwide through research, education and patient advocacy. Founded in 1991, the Hepatitis B Foundation is based in Doylestown, Pa., with staff in Washington, D.C., and Philadelphia. To learn more, go to www.hepb.org, read our blog, follow us on LinkedIn, Twitter, Instagram and Facebook (@hepbfoundation) or contact us through info@hepb.org or 215-489-4900.