Patient and Provider Opportunities
The Hepatitis B Foundation is pleased to share information about current and upcoming opportunities for people living with hepatitis B and\or D and their providers. These opportunities can be tools and resources, clinical trials, or other research opportunities to learn more from people who have hepatitis B or coinfection with delta.
HepB PROACTive: A Multinational Quality of Life Survey
The Hepatitis B Foundation is seeking participants for a new research study titled HepB PROACTive (Hepatitis B: Patient-Reported Outcomes, Adherence and Quality of Life Tracking).
The goal of this program is to better understand the daily experiences, treatment challenges and overall well-being of individuals living with chronic hepatitis B. By sharing your story, you help us advocate for better care and support services worldwide.
Who can participate?
We are currently looking for volunteers who meet the following criteria:- Age: 18 years or older.
- Diagnosis: Living with chronic hepatitis B (HBsAg+).
- Location: Currently residing in the United States, United Kingdom, Taiwan, Nigeria, Canada or Pakistan.
Participants may also complete the survey in Traditional Chinese (繁體中文) or Simplified Chinese (简体中文).
How the study works
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Baseline Survey: Complete an initial confidential online survey. This includes an automatic eligibility screening and an informed consent form at the start.
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Follow-ups: To track changes over time, we will ask you to complete two brief follow-up surveys at Month 3 and Month 6.
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Privacy: You will be asked to provide an email address solely for the purpose of receiving these follow-up links. Your information will remain confidential and will not be used to identify your individual responses.
Deadline Notice: The baseline survey must be completed by June 1, 2026
Join the program
Your voice is essential in shaping the future of hepatitis B care. Click the link below to see if you are eligible and to begin the baseline survey. Take the Quality of Life Survey [English]
The survey is also available in Traditional Chinese (繁體中文) and Simplified Chinese (简体中文).
Questions about the program? Please contact Catherine Freeland at the Hepatitis B Foundation.
Survey: Seeking youth & adolescent perspectives on hepatitis B
The Hepatitis B Foundation wants to learn about the experiences of young people with hepatitis B to improve care and support. If you or someone you know is a youth with hepatitis B, you can participate in a brief screening survey. Your insights will help inform clinicians and healthcare professionals about the unique needs of youth and adolescents.
Please sign up to participate here.
Questions? Reach out to Catherine.Freeland@hepb.org. Thank you for helping us make a difference!
Hepatitis delta research opportunity
If you are living with hepatitis delta, are at least 18 years old, and live in the United States, Mongolia, Algeria, Morocco, or Argentina, you are invited to participate in a new research opportunity! IQVIA and the Hepatitis B Foundation want to better understand the experience of living with hepatitis delta, including signs, symptoms, and impacts, to ensure that the voices of those with lived experience are included in the development of clinical trials and clinical management. This study does NOT include any treatment and will simply involve a 60-minute phone interview. You will receive compensation for your time! Share your story today - email contact@global-patients.com.
Disclaimer – The opportunities listed on this page do not represent all available opportunities. The Hepatitis B Foundation receives funding to provide information about the specific opportunities listed on this page. The Hepatitis B Foundation follows IRB-approved protocols and our own Corporate Ethics Policy for all listings. If you are interested in having an opportunity listed on this page, please email info@hepb.org.