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  • Hepatitis B Foundation Announces third series of continuing education program on hepatitis B for health care providers and public health professionals

    The Foundation continues this successful ECHO Model™ program starting in Jan. 2023. Doylestown, Pa., Dec. 8, 2022 – The Hepatitis B Foundation launched Hep B Project ECHO in 2021, and the program is now gearing up for a third series. This free CME continuing education series for health care providers and public health professionals uses the ECHO Model™ to deliver educational content about hepatitis B to physicians, nurses, pharmacists, public health coordinators, medical students/fellows and other health care professionals. This session will include didactic topics on Hepatitis B Management, Screening, Surveillance for Liver Cancer, Hepatitis Delta, Biomarkers and Hepatitis B Prevention. The first webinar will take place on Jan.26, 2023, and continue on the fourth Thursday of every month from 12 p.m. to 1 p.m. EST. Please register here. The ECHO Model™ is a nationally recognized physician education model using proven adult learning techniques and interactive video technology, the ECHO Model™ connects groups of community providers with specialists in regular real-time collaborative sessions. The sessions, designed around case-based learning and mentorship, help local workers gain the expertise required to provide needed services. Each session will include one case discussion and a short 15 minute didactic aimed to empower providers to evaluate, monitor, and treat patients with hepatitis B in the primary care setting. “We have seen great success with the ECHO Model™ in our two previous sessions and see 30-50 participants in each time. This is an incredibly valuable tool and we hope to welcome even more participants during this new series,” Catherine Freeland, MPH, PhD(c), associate director of public health research for the Hepatitis B Foundation, said. “What makes Project ECHO so valuable is the case-based learning experience, and our expert providers who help make this program possible. This unique format helps providers become empowered in treating patients with hepatitis B in a primary care setting.” Hep B Project ECHO Philadelphia is approved for continuing medical education credit for physicians. More information and registration access is posted here. The co-sponsors of Hep B Project ECHO are the National Task Force on Hepatitis B and Hep B United Philadelphia.

    https://www.hepb.org/news-and-events/news-2/hepatitis-b-foundation-announces-third-series-of-continuing-education-series-on-hepatitis-b-for-health-care-providers-and-public-health-professionals/
  • World Hepatitis Day: Preventing Hepatitis B in New York City

    By Vivian Huang, MD MPH, Hepatitis B Program Director at the Charles B Wang Community Health Center, NYC World Hepatitis Day is commemorated on July 28 every year.  The date was selected to honor the birthday of the Nobel Laureate Professor Baruch Blumberg, who discovered the hepatitis B virus. The aim on this day is to increase awareness and understanding of viral hepatitis as a major global health threat. The World Health Organization estimates that nearly 400 million people have chronic viral hepatitis worldwide and more than 1.4 million people die annually from causes related to viral hepatitis, namely cirrhosis and liver cancer. This year, World Hepatitis Day focuses on preventing viral hepatitis. Each day, 4,000 lives are lost to hepatitis. Yet, most of these deaths can be prevented. For hepatitis A and B, there are available vaccines to prevent infection.  Three dose of hepatitis B vaccine will offer more than 90 percent protection. In New York City, approximately 100,000 people are chronically infected with hepatitis B. According to 2013 New York City Department of Health Hepatitis B and C Surveillance Report, “the highest rates of newly-reported cases are in the three neighborhoods with large Chinese populations, and 60% of newly-reported patients are of Asian descent.” At our Charles B. Wang Community Health Center, our patients have a 25-times higher rate of chronic hepatitis B compared to the general U.S. population [1 in 8 persons (12.5%) is infected here, compared to 0.5% nationwide]. Because of this high disparity of chronic hepatitis B in our patient population, we strongly encourage all close household contacts and family members of infected individuals to get tested for hepatitis B. In 2014, about 1 in 5 (20.8%) of those we tested for hepatitis B were susceptible (1,411 susceptible/6,791 screened) and required immunization protect them from infection. The New York City Department of Health and Mental Hygiene provides the health center with

    http://www.hepb.org/blog/world-hepatitis-day-the-impact-of-hepatitis-b-in-new-york-city/
  • DHE's Story

    After a year of testing and waiting, DHE was diagnosed with chronic hepatitis B. He was shamed by his doctor into believing he was to blame and became too embarrassed to talk about his status. Fortunately, DHE's therapist introduced them to a local hepatitis advocacy group that provided resources and a safe and supportive space to talk about hepatitis. DHE hopes sharing his story can help stop the spread of hepatitis B in his community. 

    https://www.hepb.org/research-and-programs/patient-story-telling-project/dhes-story/
  • 'Think Again' About Hepatitis - World Hepatitis Day Events in Ghana

    Theobald Owusu-Ansah of the Theobald Hepatitis B Foundation works tirelessly to raise the profile of hepatitis B in Ghana, where the HBV prevalence is approximately 30% in blood donors. Through collaboration with others, and heightening awareness with Ghanaian celebrities, Theobald and others were able to raise viral hepatitis awareness, and provide free screening and HBV vaccination during their World Hepatitis Day event this year. Read his account below and check out Theobald and the work he and his foundation are doing at the www.theobaldhepb.org or find THBF on Facebook.  Viral hepatitis is the leading cause of liver cancer, which is the second most common cause of cancer deaths in Africa. On World Hepatitis Day, we urged the government to take actions ASAP to improve hepatitis awareness, monitoring, prevention and treatment.
 ASAP is a blue print framework for Global action, developed by the WHO to guide national government on the effective ways to prevent and control the transmission of viral hepatitis. This framework has four axes: 1.  Awareness raising, partnership promotion and resource mobilization, 2.  Scientific evidence that drives policies and actions, 3.  Access to immunization and information to prevent transmission, 4.  Provision of screening, care and treatment. Thousands of Ghanaians live with viral hepatitis. About a third of Ghanaians living with viral hepatitis are unaware of their status and are not receiving care and treatment for the condition. It is estimated that hepatitis B kills over 1 million people each year, and an estimated 1 in 12 persons are currently infected and have to face life with chronic liver disease. Ghana belongs to one of the areas where the prevalence of chronic HBV infection is high (≥8%), and that of hepatitis C is from 5-10%. There is high prevalence in approximately 30% among blood donors.
 In the year ending 2010, the incidence of viral hepatitis in Ghana was 43/100,000 population, with 102

    http://www.hepb.org/blog/think-again-about-hepatitis-world-hepatitis-day-events-in-ghana/
  • Patient and Provider Opportunities

    The Hepatitis B Foundation is pleased to share information about current and upcoming opportunities for people living with hepatitis B and\or D and their providers. These opportunities can be tools and resources, clinical trials, or other research opportunities to learn more from people who have hepatitis B or coinfection with delta.       If you are living with hepatitis delta, are at least 18 years old, and live in the United States, Mongolia, Algeria, Morocco, or Argentina, you are invited to participate in a new research opportunity! IQVIA and the Hepatitis B Foundation want to better understand the experience of living with hepatitis delta, including signs, symptoms, and impacts, to ensure that the voices of those with lived experience are included in the development of clinical trials and clinical management. This study does NOT include any treatment and will simply involve a 60-minute phone interview. You will receive compensation for your time! Share your story today - email contact@global-patients.com.     Disclaimer – The opportunities listed on this page do not represent all available opportunities. The Hepatitis B Foundation receives funding to provide information about the specific opportunities listed on this page. The Hepatitis B Foundation follows IRB-approved protocols and our own Corporate Ethics Policy for all listings. If you are interested in having an opportunity listed on this page, please email info@hepb.org.

    https://www.hepb.org/resources-and-support/patient-education-tool/
  • World Hepatitis Day in Ghana

    Ghanians lined up for a viral hepatitis screening at last year's World Hepatitis Day event in Tamale, Ghana (Northern Region) HBF is pleased to share World Hepatitis Day plans of our friend Theobald Owusu-Ansah of the Theobald Hepatitis B Foundation in Ghana. The Foundation is also a voting member of the World Hepatitis Alliance.  On July 28th, 2013, The Theobald Hepatitis B Foundation and the Hepatitis Coalition of Ghana will join the World with one voice to celebrate World Hepatitis Day in Sunyani at Victoria Park. In attendance will be the Chiefs, members of Parliament, District Chief Executives, Municipal Chief Executives, Assembly Members and all the Opinion Leaders of the Region. The Theobald Hepatitis B Foundation is a non-profit organization whose main aim is to educate and create awareness of hepatitis B and C to the general public, ranging from the causes, and symptoms of viral hepatitis, to preventive measures. On World Hepatitis Day, the activities will start with an early morning Float with music and dance throughout the principal streets of Sunyani, along with the members and volunteers of the Foundation and the Coalition distributing educational materials to the crowds. These leaflets, posters, banners and stickers are part of the ongoing media blast that will draw the public’s attention to problem of chronic hepatitis B among the people of Ghana. Free screening and hepatitis B vaccinations will be ongoing throughout the day’s activities. Resource persons will be delivering their messages and educating the general public about viral hepatitis. It is important that the people learn and understand whether or not they are positive or negative for viral hepatitis, and if they are positive, what is next. The Delegation of the Government and other health care professionals will educate the public on Viral Hepatitis Policies and the way forward. Dieticians will also take the general public through the kind of food and diet one needs to eat, and the

    http://www.hepb.org/blog/world-hepatitis-day-in-ghana/
  • World Hepatitis Day 2012 in Cairns, Queensland, Australia

    WHD 2012 Cairns: Hep Day Out friends - Yvonne, Rhondda, Murph & Allana A personal reflection on WHD events from Guest Blogger Yvonne Drazic WHD was again promoted and celebrated in style in Cairns with lots of dedicated people making it a great success. The key organizers were Rhondda, the Viral Hepatitis Health Practitioner from the Cairns Sexual Health Service, and Alanna and Julie from the Queensland Injectors’ Health Network (QuIHN). At present, the bulk of hepatitis B health promotion and patient support is done through these organizations as part of hepatitis C and HIV services because sufficient separate government funding for hepatitis B is not yet forthcoming. Last year, Rhondda organized a fabulous free lecture about hepatitis B which, while aimed at health care professionals and medical staff, was open to the public and especially to people affected by or living with hepatitis B. The speaker was Dr. Benjamin Cowie, an infectious diseases physician from Melbourne with a special interest in hepatitis B. His passionate and compelling presentation evoked great feedback from the audience, many stating it was a real eye-opener. This year’s lecture was presented by Dr. Joshua Davis who spoke equally engaging about his efforts to address hepatitis B in Indigenous communities in the Northern Territory. The talk attracted an audience of more than 100 people. As an add-on to the lecture, Aboriginal and Torres Straits Islander health workers could move on to an event/workshop called Yarnin up HepB where they were able to discuss anything hepB - and get expert advice - from Dr. Davis. This was very well received although many participants were quite disturbed about the statistics of hep B in Aboriginal and Torres Strait Islander people. This year the open day at Cairns Sexual Health Service was called “Hep Day Out”. It was designed to be fun with funky, colourful posters (created by the talented Murph) and a music jam session. Like last year, the day

    http://www.hepb.org/blog/world-hepatitis-day-2012-in-cairns-queensland-australia/
  • World Hepatitis Day Reflection: Asian Institute of Medical Sciences, Hyderabad Pakistan

    Thank you to Prof., Dr. Muhammad Sadik Memon, MBBS, FCPS (Gastro), FCPS (Med), MACP, MAGA,  for his personal reflection from World Hepatitis Day, 2012 events in Pakistan. In order to raise awareness on World Hepatitis  Day, Saturday, 28th of July 2012, the Department of Gastroenterology and Hepatology of the Asian Institute Of Medical Sciences, organized a public awareness and open discussion seminar. Gastroenterologists, family physicians, GPs, postgraduate students and para- medical staff all participated in the open discussion. The program was started in the name of “Almighty Allah” and a recitation from the Holy Quran. Dr Iqbal Haroon, Director of Hajiyani Hospital, was the moderator of the open discussion. “It  is closer than you think” was the theme of this year's World Hepatitis Day, and the open discussion focused on raising awareness on the different forms of viral  hepatitis: what they are, how they are transmitted, who is at risk, and the various methods of prevention and treatment. Professor, Dr. Sadik  Memon, organizer of this event,  said that in Pakistan, many patients have lost their lives at the hands of quacks, so Pakistan needs the strictest possible laws to fight against these quacks, and must eradicate these deadly liver diseases. Dr. Sadik Memon further described how in Pakistan millions of people are infected with HBV . He added that every 10th to 12th individual in the Pakistani population is infected with hepatitis B or C ,which far exceeds the numbers from the last big earthquake  in Pakistan. It is essential that Pakistani doctors unite to save human lives and spare them of these deadly diseases. The most important aspects of prevention are hepatitis B vaccination, the screening of blood products, sterilized equipments and better hygiene standards in barber shops. Dr. Waqar, focal person of the Government Hepatitis Program, discussed the efforts of the Sindh government regarding the hepatitis program.  He said that

    http://www.hepb.org/blog/world-hepatitis-day-reflection-asian-institute-of-medical-sciences-hyderabad-pakistan/
  • Locating Clinical Trials

    How can I locate a Clinical Trial near me? The clinical trials website is a global database of privately and publicly funded clinical studies. The website is managed by the National Institutes of Health U.S. National Library of Medicine. This is an excellent resource for finding studies in all 50 U.S. states and in 201 countries around the world. Before participating in a clinical trial, it is important to get information about the potential risks and benefits.  You can search for hepatitis B clinical trials anywhere in the world with the button below. You can also search for hepatitis Delta and liver cancer clinical trials by visiting their pages on the website.  You can also search for clinical trials using the National Institutes of Health's website. Steps to navigating the website are listed below.  To search the clinical trials database manually, follow these steps: 1. Visit www.clinicaltrials.gov, and you will see the screen below: 2. Search for hepatitis B clinical trials Under the “Search” section, in the “Condition/Disease” box, input ‘hepatitis B.’ You may also choose to input ‘HBV’ and/or ‘hep B’ into the “Other Terms” section, to be sure to pick up studies that refer to hepatitis B by another name. In the “Other terms” section, you can even input a specific trial number or drug name to narrow your search. In the “Country” section, enter your location. If you are in the U.S., you can also include the state and city where you live. For other countries, you may list a city. You can also include a specified distance with the number of miles from your specified location. (Note: It may be necessary to expand your search beyond your local area in order to find a trial.) Click “Search” to see your search results. You will be taken to a page with a list of the clinical trials that fit your search criteria – all hepatitis B trials for the location you have selected. These will include trials that are looking for participants as well as those that are not yet recruiting, or have completed. 3. Narrow your search by recruitment status There are many filters, but the most helpful for you will be “Recruitment status, which provides the best options for currently active clinical trials including:  “Not yet recruiting” “Recruiting” “Enrolling by invitation” “Active, not recruiting” If you are looking for a trial to join immediately, “recruiting” would be the best option, although it may be useful to be aware of trials that will soon be recruiting, or studies that are not recruiting, but have active participants. It is always helpful to know where there may be leading hepatitis B research and expertise near you. Before narrowing your search further, it is important to know your disease specifics so that you can use additional filters. You will see filters that will help you narrow your search on the left side of the page. Some filters include “eligibility criteria” (age, gender, etc.) and “study type.” This is a brief guide on locating a clinical trial for hepatitis B and may not address all your specific concerns. You may consider asking your doctor for more information about clinical trials and what best fits the needs of your condition. For additional guidance on locating on a clinical trial, visit our Narrowing Your Search Further page or the ClinicalTrials.gov website. 

    https://www.hepb.org/treatment-and-management/clinical-trials/locating-clinical-trials/
  • Webinars

    The Scientific Journey of Bulevirtide: Discovery, Development, and Mode of Action Expert Speaker: Dr. Stephan Urban, head of the Translational Virology Unit at the Department of Infectious Diseases at Heidelberg University Hospital, and Project Coordinator in the German Center for Infection Research, TTU Hepatitis [embed width="512" height="384" class="leftAlone" thumbnail="https://i.ytimg.com/vi/BQqFdKviXCQ/hqdefault.jpg?r"]http://www.youtube.com/watch?v=BQqFdKviXCQ[/embed] Download Dr. Urban slides The Lived Experience of Hepatitis Delta Expert Speakers:  Basu, Lori, Danielle, and Ibrahima, all of whom are living with or caring for others living with hepatitis delta [embed width="510" height="288" class="leftAlone" thumbnail="https://i.ytimg.com/vi/0ffeCqgft8U/hqdefault.jpg?r"]http://www.youtube.com/watch?v=0ffeCqgft8U[/embed] Hepatitis Delta Virus: Screening Barriers Around the World & Management in the Absence of Treatment Expert Speakers:  Dr. Zaigham Abbas, Professor and Head, Department of Gastroenterology at Dr. Ziauddin University Hospital in Karachi, Pakistan Dr. Jose Debes, Associate Professor of Medicine, Division of Infectious Diseases and International Medicine at the University of Minnesota Medical School in the United States Dr. Richard Njouom, Head, Division of Virology at Centre Pasteur of Cameroon Dr. Domingo C. Balderramo, Provider of Gastroenterology and Digestive Endoscopy Services at Private University Hospital in Cordoba, Argentina Dr. Raymundo Parana, Professor of Medicine, Gastro-Hepatology Unit, School of Medicine, Federal University of Bahia in Salvador, Brazil Dr. Marina Carmen Berenguer, Hepatologist and Professor, Universitat de Valencia, Spain [embed width="529" height="299" class="leftAlone" thumbnail="https://i.ytimg.com/vi/PzJphhefq-c/hqdefault.jpg?r"]http://youtu.be/PzJphhefq-c[/embed] Download Dr. Debes Slides and Download Dr. Njouom Slides and Download Dr. Berenguer Slides Understanding Liver Cancer Risk for Those Living with Hepatitis B & D Viruses & Overview of Hepatitis B Foundation Storytelling Programs Expert Speaker: Dr. Habiba Kamal, Researcher in the Division of Infectious Diseases and Dermatology at the Department of Medicine, Karolinska Institutet, Stockholm [embed width="531" height="300" class="leftAlone" thumbnail="https://i.ytimg.com/vi/vUr3soBgHNs/hqdefault.jpg?r"]http://www.youtube.com/watch?v=vUr3soBgHNs[/embed] Download Dr. Kamal Slides and Download #justB Storyteller Slides Hepatitis Delta Virus: Overview and Latest Treatments Expert Speaker: Dr. Ira Jacobson, Professor of Medicine and Director of Hepatology, New York University, Langone Health Download Hepatitis Delta Virus: Overview and Latest Treatments Slides Hepatitis Delta Treatment Endpoints: How Do We Measure Success in the Era of Emerging Therapies? Expert Speaker: Dr. Ohad Etzion - Director, Department of Gastroenterology and Liver Diseases, Soroka University Medical Center, Israel [embed width="520" height="390" class="leftAlone" thumbnail="https://i.ytimg.com/vi/LrBaO1kVUog/hqdefault.jpg?r"]http://youtu.be/LrBaO1kVUog[/embed] Download Hepatitis Delta Treatment Endpoints: How Do We Measure Success in the Era of Emerging Therapies? Slides Hepatitis Delta in Sub-Saharan Africa Expert Speaker: Dr. Hailemichael Desalegn - Associate Professor and Head of Gastroenterology and Hepatology Unit at St. Paul's Hospital in Ethiopia, and Vice President of the Ethiopian Gastroenterology Association [embed width="529" height="398" class="leftAlone" thumbnail="https://i.ytimg.com/vi/dbPKuVpdbjg/hqdefault.jpg?r"]http://www.youtube.com/watch?v=dbPKuVpdbjg[/embed]  Download Hepatitis Delta in Sub-Saharan Africa Slides Hepatitis Delta: Current and Future Treatments Expert Speaker: Dr. Cihan Yurdaydin - University of Ankara Medical School, Turkey [embed width="533" height="400" class="leftAlone" thumbnail="https://i.ytimg.com/vi/CMrKdwZ1lSg/hqdefault.jpg?r"]http://www.youtube.com/watch?v=CMrKdwZ1lSg[/embed] Download Hepatitis Delta: Current and Future Treatments Slides Hepatitis Delta Molecular Virology Expert Speaker: Dr. Jean-Michel Pawlotsky - Chief of Biology at the French National Reference Center for Viral Hepatitis B, C and Delta Hepatitis Delta in Romania Expert Speaker: Dr. Florin Caruntu - National Institute of Infectious Diseases, Bucharest, Romania [embed width="562" height="422" class="leftAlone" thumbnail="https://i.ytimg.com/vi/ylPnD2I4ERA/hqdefault.jpg?r"]http://www.youtube.com/watch?v=ylPnD2I4ERA[/embed] Hepatitis Delta: The Hidden Epidemic Expert Speaker: Robert Gish, MD - Medical Director, Hepatitis B Foundation Download Hepatitis Delta: The Hidden Epidemic Slides A Real World Look at New Hepatitis Delta Prevalence Data in the U.S.  Expert Speaker: Eduardo Martins, MD, D.Phil - SVP, Liver and Infectious Diseases - Eiger Biopharmaceuticals Download A Real World Look at Hepatitis Delta Prevalence in the U.S. Slides Diagnosing Hepatitis Delta in the U.S. Expert Speakers: Robert Gish, MD - Medical Director, Hepatitis B Foundation David Hillyard, MD - Medical Director, Molecular Infectious Diseases, ARUP Laboratories[embed width="565" height="424" class="leftAlone" thumbnail="https://i.ytimg.com/vi/Z-M8J5izbJU/hqdefault.jpg?r"]http://youtu.be/Z-M8J5izbJU[/embed] Download Diagnosing Hepatitis Delta in the U.S. Slides (additional slides added)

    https://www.hepb.org/research-and-programs/hepdeltaconnect/webinars/