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  • What Are You Doing for World Hepatitis Day?

      What Are You Doing For World Hepatitis Day? Every July 28, we celebrate World Hepatitis Day in honor of Dr. Baruch Blumberg’s birthday. Dr. Blumberg discovered the hepatitis B virus in 1967 and subsequently developed the hepatitis B vaccine two years later in 1969. We commemorate World Hepatitis Day by raising awareness about viral hepatitis. With almost 300 million individuals living with hepatitis B worldwide, it is so important to bring awareness to this preventable and treatable disease to create meaningful change. This year, the World Hepatitis Alliance’s theme is Hepatitis Can’t Wait.  Their campaign highlights how we cannot wait to get tested, vaccinated, reduce stigma and discrimination, and we can’t wait to act. You can join their campaign here. The Hepatitis B Foundation is dedicated to raising the profile of hepatitis B as an urgent public health problem, improving the quality of life for those living with hepatitis B and working towards eliminating hepatitis B related stigma and discrimination. This year we are elevating the voice of individuals living with hepatitis B by highlighting five new #BtheVoice videos from real people living in Nigeria. These audio recordings were captured by Catherine Freeland, MPH, Associate Director of Public Health at the Hepatitis B Foundation during a recent trip to Nigeria where she worked on enhancing and the need for timely birth dose to prevent mother to child transmission of hepatitis B. We believe that elevating the voices of those who have hepatitis B is the best way to spread awareness for the need to find a cure, provide screening and treatment and work to fight stigma and discrimination. You can watch the videos here. So, what will you do today to honor World Hepatitis Day? It can be as simple as sharing hepatitis B related information on Facebook, Instagram, Twitter, WeChat, or WhatsApp. You could tell your friends and family about hepatitis B and how it impacts your life or people in your

    http://www.hepb.org/blog/world-hepatitis-day-2022/
  • Happy World Hepatitis Day!

    Every year on July 28th,  we celebrate World Hepatitis Day in honor of Dr. Baruch Blumberg’s birthday. Dr. Blumberg discovered the hepatitis B virus in 1967 and subsequently developed the hepatitis B vaccine two years later in 1969. We commemorate World Hepatitis Day by raising awareness about viral hepatitis. With almost 300 million individuals living with hepatitis B worldwide, it is so important to bring awareness to this preventable and treatable disease. This year’s World Hepatitis Day theme is “Hepatitis Can’t Wait”. The theme focuses on the fact that people with viral hepatitis need action now - to make sure they have access to testing and treatment to save their lives. Get Involved Here are some ways you can get involved with World Hepatitis Day! Share on Social Media You can get involved with the Hepatitis Can’t Wait campaign by doing 1-minute actions, 10-minute actions, or longer actions! Your actions can be as simple as sharing a post on social media or more involved like getting in contact with your policymaker to encourage viral hepatitis prioritization Discrimination Registry  If you are experiencing discrimination due to your hepatitis B status, consider adding your story to our discrimination registry. We are working to document discrimination related to hepatitis B. Discrimination is defined as the unjust, unfair or prejudicial treatment of a person on the grounds of their hepatitis B status. In other words, being treated differently because of one’s hepatitis B infection. For someone with hepatitis B, this can mean exclusion, denying benefits, denied employment, education, training, goods or services, or having significant burdens imposed on an individual due to their infection status. Become an Advocate Become a Hep B Advocate! Sign up below to receive the latest news and updates about hep B policy issues, learn about upcoming advocacy events, and be notified of opportunities to take action and show your support for our policy

    http://www.hepb.org/blog/happy-world-hepatitis-day/
  • Hepatitis B and Hepatitis Delta

      What is Hepatitis Delta Hepatitis delta is a liver infection that results from the hepatitis delta virus (also known as HDV) that causes the most severe form of viral hepatitis known to human beings. It is also the smallest virus known to infect humans. Hepatitis delta is unique because it is dependent on the hepatitis B virus (HBV) to infect and reproduce in liver cells, so those already infected with hepatitis B are at a greatly increased risk of developing hepatitis delta. Since testing for hepatitis delta is not as widespread as it should be (everyone who is diagnosed with hepatitis B should also be tested for hepatitis delta), the exact number of people living with hepatitis delta is unknown. Some reports point to 15-20 million people living with hepatitis delta worldwide, but other studies have estimated that as many as 60-70 million people could be living with hepatitis delta around the world. Co-Infection with Hepatitis B Co-infection with hepatitis B and hepatitis delta can cause more serious liver disease than hepatitis B infection alone. This includes faster progression to liver fibrosis (or scarring), higher risk of liver cancer, and earlier onset of cirrhosis or liver failure. There are two ways in which someone living with hepatitis B can become infected with hepatitis delta. One is through co-infection, which occurs when an individual acquires hepatitis B and hepatitis delta infections at the same time, and the other is through super-infection, which occurs when someone who is already living with hepatitis B acquires hepatitis delta. A co-infection is less common and will often clear up on its own within six months, but sometimes it can cause very dangerous or fatal liver failure. A superinfection is more common and is the culprit of severe liver disease. As many as 90% of people with a superinfection will develop chronic (life-long) hepatitis B and hepatitis delta infections, 70% of which will progress to cirrhosis. This compares to only

    http://www.hepb.org/blog/hepatitis-b-hepatitis-delta/
  • #ThrowbackWHD: Hep B United Summits, Advocacy Days and World Hepatitis Days Through The Years

      While we were not able to gather together for our annual Hep B United Summit this World Hepatitis Day to discuss best practices, advocate on Capitol Hill, and innovate ideas together to improve testing,  hep B vaccination and linkage to care and treatment for hep B in our communities, we did have our Virtual Week of Advocacy. Hep B advocates emailed their Congress members to ensure policy priorities include provisions for hepatitis B elimination -specifically supporting funding for a hep B cure and CDC viral hepatitis programs.  You too can advocate for hepatitis B elimination here! The templates make it so easy! To learn more about past  Hep B United Summits, check out previous summit agendas and presentations here. Join us today, World Hepatitis Day, for a Twitter Storm all day long sharing  memories, pics and videos  from past Hep B United Summits,  Advocacy Days and  World Hepatitis Day events.  Tag your posts and pics with #ThrowbackWHD, #WorldHepatitisDay, and #HepBUnite. Be sure to tag @HepBUnited and @HepBFoundation on Instagram, Twitter, or Facebook!

    http://www.hepb.org/blog/throwbackwhd-hep-b-united-summits-years/
  • Printable Hepatitis Delta Fact Sheets for At-Risk Populations (Available in 5 Languages!)

      Hepatitis delta is estimated to affect 15-20 million people globally who are also living with hepatitis B. Hepatitis delta’s geographic distribution is not uniform, and does not always follow regions of highest hepatitis B prevalence. Although more recent data is sparse, regions of higher coinfection are thought to be in Mongolia, Eastern Europe (particularly Romania, Russia, Georgia, Turkey), Pakistan, the Middle East and the Amazonian River Basin. The American Association for the Study of Liver Diseases (AASLD) recommends that hepatitis B patients from these areas be tested for hepatitis delta. If you are a community member or community health worker or physician, please utilize our printable fact sheets to help raise awareness about hepatitis B and delta! Fact sheets are available in 5 languages, including English, Mongolian, Romanian, Russian and Spanish! English for Patients    English for Providers Mongolian for Patients   Mongolian for Providers Romanian for Patients   Romanian for Providers Russian for Patients   Russian for Providers Spanish for Patients   Spanish for Providers For more information on hepatitis B and delta coinfection, visit www.hepdconnect.org or contact us at connect@hepdconnect.org.

    http://www.hepb.org/blog/printable-hepatitis-delta-fact-sheets-risk-populations-available-5-languages/
  • Hepatitis B Foundation Announces third series of continuing education program on hepatitis B for health care providers and public health professionals

    The Foundation continues this successful ECHO Model™ program starting in Jan. 2023. Doylestown, Pa., Dec. 8, 2022 – The Hepatitis B Foundation launched Hep B Project ECHO in 2021, and the program is now gearing up for a third series. This free CME continuing education series for health care providers and public health professionals uses the ECHO Model™ to deliver educational content about hepatitis B to physicians, nurses, pharmacists, public health coordinators, medical students/fellows and other health care professionals. This session will include didactic topics on Hepatitis B Management, Screening, Surveillance for Liver Cancer, Hepatitis Delta, Biomarkers and Hepatitis B Prevention. The first webinar will take place on Jan.26, 2023, and continue on the fourth Thursday of every month from 12 p.m. to 1 p.m. EST. Please register here. The ECHO Model™ is a nationally recognized physician education model using proven adult learning techniques and interactive video technology, the ECHO Model™ connects groups of community providers with specialists in regular real-time collaborative sessions. The sessions, designed around case-based learning and mentorship, help local workers gain the expertise required to provide needed services. Each session will include one case discussion and a short 15 minute didactic aimed to empower providers to evaluate, monitor, and treat patients with hepatitis B in the primary care setting. “We have seen great success with the ECHO Model™ in our two previous sessions and see 30-50 participants in each time. This is an incredibly valuable tool and we hope to welcome even more participants during this new series,” Catherine Freeland, MPH, PhD(c), associate director of public health research for the Hepatitis B Foundation, said. “What makes Project ECHO so valuable is the case-based learning experience, and our expert providers who help make this program possible. This unique format helps providers become empowered in treating patients with hepatitis B in a primary care setting.” Hep B Project ECHO Philadelphia is approved for continuing medical education credit for physicians. More information and registration access is posted here. The co-sponsors of Hep B Project ECHO are the National Task Force on Hepatitis B and Hep B United Philadelphia.

    https://www.hepb.org/news-and-events/news-2/hepatitis-b-foundation-announces-third-series-of-continuing-education-series-on-hepatitis-b-for-health-care-providers-and-public-health-professionals/
  • DHE's Story

    After a year of testing and waiting, DHE was diagnosed with chronic hepatitis B. He was shamed by his doctor into believing he was to blame and became too embarrassed to talk about his status. Fortunately, DHE's therapist introduced them to a local hepatitis advocacy group that provided resources and a safe and supportive space to talk about hepatitis. DHE hopes sharing his story can help stop the spread of hepatitis B in his community. 

    https://www.hepb.org/research-and-programs/patient-story-telling-project/dhes-story/
  • Patient and Provider Opportunities

    The Hepatitis B Foundation is pleased to share information about current and upcoming opportunities for people living with hepatitis B and\or D and their providers. These opportunities can be tools and resources, clinical trials, or other research opportunities to learn more from people who have hepatitis B or coinfection with delta.       If you are living with hepatitis delta, are at least 18 years old, and live in the United States, Mongolia, Algeria, Morocco, or Argentina, you are invited to participate in a new research opportunity! IQVIA and the Hepatitis B Foundation want to better understand the experience of living with hepatitis delta, including signs, symptoms, and impacts, to ensure that the voices of those with lived experience are included in the development of clinical trials and clinical management. This study does NOT include any treatment and will simply involve a 60-minute phone interview. You will receive compensation for your time! Share your story today - email contact@global-patients.com.     Disclaimer – The opportunities listed on this page do not represent all available opportunities. The Hepatitis B Foundation receives funding to provide information about the specific opportunities listed on this page. The Hepatitis B Foundation follows IRB-approved protocols and our own Corporate Ethics Policy for all listings. If you are interested in having an opportunity listed on this page, please email info@hepb.org.

    https://www.hepb.org/resources-and-support/patient-education-tool/
  • Locating Clinical Trials

    How can I locate a Clinical Trial near me? The clinical trials website is a global database of privately and publicly funded clinical studies. The website is managed by the National Institutes of Health U.S. National Library of Medicine. This is an excellent resource for finding studies in all 50 U.S. states and in 201 countries around the world. Before participating in a clinical trial, it is important to get information about the potential risks and benefits.  You can search for hepatitis B clinical trials anywhere in the world with the button below. You can also search for hepatitis Delta and liver cancer clinical trials by visiting their pages on the website.  You can also search for clinical trials using the National Institutes of Health's website. Steps to navigating the website are listed below.  To search the clinical trials database manually, follow these steps: 1. Visit www.clinicaltrials.gov, and you will see the screen below: 2. Search for hepatitis B clinical trials Under the “Search” section, in the “Condition/Disease” box, input ‘hepatitis B.’ You may also choose to input ‘HBV’ and/or ‘hep B’ into the “Other Terms” section, to be sure to pick up studies that refer to hepatitis B by another name. In the “Other terms” section, you can even input a specific trial number or drug name to narrow your search. In the “Country” section, enter your location. If you are in the U.S., you can also include the state and city where you live. For other countries, you may list a city. You can also include a specified distance with the number of miles from your specified location. (Note: It may be necessary to expand your search beyond your local area in order to find a trial.) Click “Search” to see your search results. You will be taken to a page with a list of the clinical trials that fit your search criteria – all hepatitis B trials for the location you have selected. These will include trials that are looking for participants as well as those that are not yet recruiting, or have completed. 3. Narrow your search by recruitment status There are many filters, but the most helpful for you will be “Recruitment status, which provides the best options for currently active clinical trials including:  “Not yet recruiting” “Recruiting” “Enrolling by invitation” “Active, not recruiting” If you are looking for a trial to join immediately, “recruiting” would be the best option, although it may be useful to be aware of trials that will soon be recruiting, or studies that are not recruiting, but have active participants. It is always helpful to know where there may be leading hepatitis B research and expertise near you. Before narrowing your search further, it is important to know your disease specifics so that you can use additional filters. You will see filters that will help you narrow your search on the left side of the page. Some filters include “eligibility criteria” (age, gender, etc.) and “study type.” This is a brief guide on locating a clinical trial for hepatitis B and may not address all your specific concerns. You may consider asking your doctor for more information about clinical trials and what best fits the needs of your condition. For additional guidance on locating on a clinical trial, visit our Narrowing Your Search Further page or the ClinicalTrials.gov website. 

    https://www.hepb.org/treatment-and-management/clinical-trials/locating-clinical-trials/
  • Webinars

    The Scientific Journey of Bulevirtide: Discovery, Development, and Mode of Action Expert Speaker: Dr. Stephan Urban, head of the Translational Virology Unit at the Department of Infectious Diseases at Heidelberg University Hospital, and Project Coordinator in the German Center for Infection Research, TTU Hepatitis [embed width="512" height="384" class="leftAlone" thumbnail="https://i.ytimg.com/vi/BQqFdKviXCQ/hqdefault.jpg?r"]http://www.youtube.com/watch?v=BQqFdKviXCQ[/embed] Download Dr. Urban slides The Lived Experience of Hepatitis Delta Expert Speakers:  Basu, Lori, Danielle, and Ibrahima, all of whom are living with or caring for others living with hepatitis delta [embed width="510" height="288" class="leftAlone" thumbnail="https://i.ytimg.com/vi/0ffeCqgft8U/hqdefault.jpg?r"]http://www.youtube.com/watch?v=0ffeCqgft8U[/embed] Hepatitis Delta Virus: Screening Barriers Around the World & Management in the Absence of Treatment Expert Speakers:  Dr. Zaigham Abbas, Professor and Head, Department of Gastroenterology at Dr. Ziauddin University Hospital in Karachi, Pakistan Dr. Jose Debes, Associate Professor of Medicine, Division of Infectious Diseases and International Medicine at the University of Minnesota Medical School in the United States Dr. Richard Njouom, Head, Division of Virology at Centre Pasteur of Cameroon Dr. Domingo C. Balderramo, Provider of Gastroenterology and Digestive Endoscopy Services at Private University Hospital in Cordoba, Argentina Dr. Raymundo Parana, Professor of Medicine, Gastro-Hepatology Unit, School of Medicine, Federal University of Bahia in Salvador, Brazil Dr. Marina Carmen Berenguer, Hepatologist and Professor, Universitat de Valencia, Spain [embed width="529" height="299" class="leftAlone" thumbnail="https://i.ytimg.com/vi/PzJphhefq-c/hqdefault.jpg?r"]http://youtu.be/PzJphhefq-c[/embed] Download Dr. Debes Slides and Download Dr. Njouom Slides and Download Dr. Berenguer Slides Understanding Liver Cancer Risk for Those Living with Hepatitis B & D Viruses & Overview of Hepatitis B Foundation Storytelling Programs Expert Speaker: Dr. Habiba Kamal, Researcher in the Division of Infectious Diseases and Dermatology at the Department of Medicine, Karolinska Institutet, Stockholm [embed width="531" height="300" class="leftAlone" thumbnail="https://i.ytimg.com/vi/vUr3soBgHNs/hqdefault.jpg?r"]http://www.youtube.com/watch?v=vUr3soBgHNs[/embed] Download Dr. Kamal Slides and Download #justB Storyteller Slides Hepatitis Delta Virus: Overview and Latest Treatments Expert Speaker: Dr. Ira Jacobson, Professor of Medicine and Director of Hepatology, New York University, Langone Health Download Hepatitis Delta Virus: Overview and Latest Treatments Slides Hepatitis Delta Treatment Endpoints: How Do We Measure Success in the Era of Emerging Therapies? Expert Speaker: Dr. Ohad Etzion - Director, Department of Gastroenterology and Liver Diseases, Soroka University Medical Center, Israel [embed width="520" height="390" class="leftAlone" thumbnail="https://i.ytimg.com/vi/LrBaO1kVUog/hqdefault.jpg?r"]http://youtu.be/LrBaO1kVUog[/embed] Download Hepatitis Delta Treatment Endpoints: How Do We Measure Success in the Era of Emerging Therapies? Slides Hepatitis Delta in Sub-Saharan Africa Expert Speaker: Dr. Hailemichael Desalegn - Associate Professor and Head of Gastroenterology and Hepatology Unit at St. Paul's Hospital in Ethiopia, and Vice President of the Ethiopian Gastroenterology Association [embed width="529" height="398" class="leftAlone" thumbnail="https://i.ytimg.com/vi/dbPKuVpdbjg/hqdefault.jpg?r"]http://www.youtube.com/watch?v=dbPKuVpdbjg[/embed]  Download Hepatitis Delta in Sub-Saharan Africa Slides Hepatitis Delta: Current and Future Treatments Expert Speaker: Dr. Cihan Yurdaydin - University of Ankara Medical School, Turkey [embed width="533" height="400" class="leftAlone" thumbnail="https://i.ytimg.com/vi/CMrKdwZ1lSg/hqdefault.jpg?r"]http://www.youtube.com/watch?v=CMrKdwZ1lSg[/embed] Download Hepatitis Delta: Current and Future Treatments Slides Hepatitis Delta Molecular Virology Expert Speaker: Dr. Jean-Michel Pawlotsky - Chief of Biology at the French National Reference Center for Viral Hepatitis B, C and Delta Hepatitis Delta in Romania Expert Speaker: Dr. Florin Caruntu - National Institute of Infectious Diseases, Bucharest, Romania [embed width="562" height="422" class="leftAlone" thumbnail="https://i.ytimg.com/vi/ylPnD2I4ERA/hqdefault.jpg?r"]http://www.youtube.com/watch?v=ylPnD2I4ERA[/embed] Hepatitis Delta: The Hidden Epidemic Expert Speaker: Robert Gish, MD - Medical Director, Hepatitis B Foundation Download Hepatitis Delta: The Hidden Epidemic Slides A Real World Look at New Hepatitis Delta Prevalence Data in the U.S.  Expert Speaker: Eduardo Martins, MD, D.Phil - SVP, Liver and Infectious Diseases - Eiger Biopharmaceuticals Download A Real World Look at Hepatitis Delta Prevalence in the U.S. Slides Diagnosing Hepatitis Delta in the U.S. Expert Speakers: Robert Gish, MD - Medical Director, Hepatitis B Foundation David Hillyard, MD - Medical Director, Molecular Infectious Diseases, ARUP Laboratories[embed width="565" height="424" class="leftAlone" thumbnail="https://i.ytimg.com/vi/Z-M8J5izbJU/hqdefault.jpg?r"]http://youtu.be/Z-M8J5izbJU[/embed] Download Diagnosing Hepatitis Delta in the U.S. Slides (additional slides added)

    https://www.hepb.org/research-and-programs/hepdeltaconnect/webinars/