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Join the Conversation at the 2019 Hep B United Summit; Watch Summit Sessions On Facebook Live!
… the sessions with Facebook Live? Follow the conversation on Twitter using the #Hepbunite19 hashtag. Follow the events, retweet and engage with event attendees and help us raise hepatitis B awareness in the U.S. and around the globe. We'll also be posting on twitter during our Advocacy Day, Tuesday, July 23rd. World Hepatitis Day is July 28th, and this Summit is an opportunity to share with the world what we’re doing to help those living with hepatitis B in our communities. Other popular hashtags for World Hepatitis Day, and to raise hepatitis B awareness, include: #NOhep, #KnowHepB, #WorldHepatitisDay, #WorldHepDay, #WHD2019, #FindTheMissingMillions #hepatitis, #hepatitisB, #HBV, #hepB, #justB. Connect with, follow and engage with fellow partners and advocates on twitter to keep the hep B conversation going during the Hep B United Summit, World Hepatitis Day events, and beyond. Check out: @AAPCHOpolicy, @aidsadvocacy, @alex_daleks, @aphfsd, @APPEALhealth, @AVACNow, @bentheactivator, @CAHE_AHC, @catherineafree, @CDAFound, @cdchep, @CDC_TB, @ChoosonB, @hepBaware, @HBIDC, @HepBFoundation, @HepBpolicy, @HepBUnited, @HepBUnitedPhila, @hepdconnect, @HepEduProject, @HepFreeHawaii, @hepfreeNYC, @HHS_ViralHep, @HOPECHC, @iwgroup, @jacki0362, @jeffaapcho, @KCSNY, @kmoraras, @Liz98223514, @nirahjohnson, @NYU_CSAAH, @ponnivp, @randrews98, @RheaRacho, @swang8 @tuugiil73 Missing from the list? Contact the Foundation at info@hepb.org to be added. We're having a World Hepatitis Day exhibit on Capitol Hill in the Rayburn Building Foyer, Friday, July 26th from 10 am to 3 pm. We'll be asking legislators and partners how they plan to "Find the Missing Millions" living with hepatitis B. Visit the Hep B United and Hepatitis B Foundation websites for more information about hepatitis B and related programs.
http://www.hepb.org/blog/join-conversation-2019-hep-b-united-summit-watch-summit-sessions-facebook-live/ -
Join us for a Hepatitis Awareness Month Twitter Chat!
… (NACCHO) - @NACCHOAlerts Hep Education project - @HepEduProject San Francisco Hep B Free - Bay Area - @sfhepbfree Confirmed Participants Hep B United - @HepBUnited Hep B United Philadelphia - @HepBunitedPhila AAPCHO - @hepBPolicy Hepatitis Delta Connect - @Hepdconnnect Hep Free NYC -@hepfreenyc Hepatitis C Allies of Philadelphia (HepCAP) - @Hep_CAP HBI-DC - @HBIDC Coalition Against Hepatitis for People of African Origin - @CHIPO_HBV Liver Cancer Connect - @livercancerconn Hep Free Hawaii - @HepFreeHawaii Hepatitis Business Solutions - @HenryEChang U.S. Department of Health & Human Services - @HHS_ViralHep Asian Health Coalition - @CAHE_AHC Rhode Island Department of Health - @RIHealth Email Michaela.jackson@hepb.org to confirm your participation and to be added to the list. Looking forward to the conversation, June 13th!
https://www.hepb.org/blog/get-ready-hepatitis-awareness-month-twitter-chat/ -
Talk with Dr. Block: An Expert's Insight to A Hepatitis B Cure - Part 2
… short amount of time like the hepatitis C cure. More research needs to be done in order to truly determine what form the cure might take. How long do you anticipate someone will need to be treated? A person would likely need to be treated for a few years. I base this time frame on the lifespan of an infected cell and how long I think it would take to safely replace the infected cells with healthy, uninfected cells. However, it is important to remember that people with chronic hepatitis B differ by the number of infected cells they have in their liver; some people may have most of their liver infected while others might have a smaller portion of their liver infected. The replication of the virus in the body and immune response also differ from person to person. Due to these factors, treatment will likely be administered by some form of response-guided therapy (RGT). This type of treatment means that a doctor will monitor the patient as they take the medication and adjust it as needed. Some patients will respond rapidly to the drugs and will be able to end treatment sooner than others. When can we anticipate a combination of therapies resulting in a cure? I’m very optimistic. At the moment, it looks like we might see the approval of one to two new drugs for hepatitis B or hepatitis Delta between the next 18 months and 2 years. The approval of these potential drugs is dependent upon the research conducted in clinical trials, but there are several drugs set to enter Phase 3 of their trials, which is promising! I expect that entry inhibitors - antiretroviral drugs that block a virus from infecting a healthy cell - will be among the first round of new drugs to be approved by the Food and Drug Administration (FDA). It is difficult to say if they will be a cure, but they will likely be a big step in the right direction! Disclaimer: The information provided in this article is based upon recent research and updates in the field. Please note that
http://www.hepb.org/blog/talk-dr-block-experts-insight-hepatitis-b-cure-part-2/ -
Join the Conversation at the Hep B United Summit; Watch Summit Sessions On Facebook Live!
… in reaching new partners to increase hepatitis B screening, vaccination and linkage to care. Developing Innovative Practices in Hepatitis B Education and Screening (Hepatitis B Foundation Facebook Live) Moderator: Catherine Freeland, MPH, Public Health Program Manager, Hepatitis B Foundation Panelists: Brandi Dobbs, FNP-BC, CNS-CH,Asian Services in Action, Inc. Karen Jiobu, Asian American Community Services Layal Rabat, MA,Asian Pacific Community in Action Xuan Phan, Mercy Housing and Human Development Share results from the Hep B United Mini Grants Program. Day 2 – Thursday July 26 9:00 AM: Improving Access to Hepatitis B Treatment Wayne Turner, Senior Attorney National Health Law Program (NHeLP) Sierra Pellechio, BS, CHES, Health Outreach Coordinator, Hepatitis B Foundation Lauren Su, Hepatitis B Foundation 10:30 AM: Increasing Provider Knowledge about Hepatitis B Richard Andrews, MD, MPH, Co-Chair, National Task Force on Hepatitis B MPH, and Medical Director, HOPE Clinic Amy Tang, MD, MPH, Co-Chair, National Task Force on Hepatitis B and Hepatitis B Program Director, Charles B. Wang Community Health Center 1:30 PM: Achieving Health Equity to Eliminate Hepatitis B Facilitator: Cynthia Jorgensen Not able to join the sessions with Facebook Live? Follow the conversation on Twitter using the #Hepbunite hashtag. Follow the events, retweet and engage with event attendees and help us raise hepatitis B awareness in the U.S. and around the globe. World Hepatitis Day is July 28th, and this Summit is a terrific opportunity to share with the world what we’re doing to help those living with hepatitis B in our communities. Other popular hashtags for World Hepatitis Day, and to raise hepatitis B awareness, include: #NOhep, #KnowHepB, #WorldHepatitisDay, #WorldHepDay, #WHD2018, #FindTheMissingMillions #hepatitis, #hepatitisB, #HBV, #hepB, #justB. Connect with, follow and engage with fellow partners and advocates on twitter to keep the hep B conversation going
http://www.hepb.org/blog/6466-2/ -
Join a Twitter Chat: Organizations Share Highlights From Hepatitis Awareness Month
… Roundtable (NVHR) - @NVHR1 Hep Free NYC - @HepFreeNYC HBI-Minnesota/HBI-MN - @HBIMN15 End Hep C SF - @EndHepCSF Philadelphia's Hepatitis C Coalition - @Hep_Cap Confirmed Participants: Hep B United Philadelphia - @HepBunitedPhila National Association of County and Health Officials (NACCHO) - @NACCHOalerts Hep Free Hawaii - @HepFreeHawaii Hepatitis B Initiative of Washington, DC (HBI-DC) - @HBIDC Hepatitis Education Project - @HepEduProject Association of Asian Pacific Community Health Centers (AAPCHO) - AAPCHOtweets Hepatitis Delta Connect - @Hepdconnnect Center for Pan Asian Community Services (CPACS) - @CPACS Henry E. Chang - @HenryEChang Asian Pacific Community in Action (APCA) - @APCAAZ HepVu - @HepVu Charles B. Wang Community Health Center - @CBWCHC Office of HIV/AIDS & Infectious Disease Policy - @HHS_ViralHep Minnesota Department of Health - @MNhealth Center for Asian Health Equity (CAHE) - @CAHE_News HHS OASH Region II - @HHS_HealthRegII We’d love to add you or your organization to our list of confirmed participants. Email Kristine at Kristine.Alarcon@hepb.org or direct message @hepbfoundation on Twitter to add your organization, though confirmation is not necessary to participate. Are you just getting started with Twitter and want to know how to join the conversation? Type #HepChat in the search box of the Twitter application and click on the “latest option” to follow the twitter view. You can prepare any questions or tweets you might have for the above topics in advance, or you can also tweet on the fly, re-tweet, or Like a tweet from the chat. The topics are labeled T1, T2, etc. so please respond/answer a specific topic by using A1, A2, etc. in front of your tweets. Remember to include the #HepChat hashtag, which is not case sensitive, in all of your tweets. Looking forward to the conversation, June 14th!
http://www.hepb.org/blog/join-twitter-chat-national-organizations-share-highlights-hepatitis-awareness-month-strategies-successful-events-2/ -
Hepatitis B Foundation mourns Bill Mason, an accomplished scientist whose discovery led to current treatments for hepatitis B
Dr. Mason was long-time scientific and medical advisor to the Foundation. Doylestown, Pa., Sept. 21, 2022 – The Hepatitis B Foundation mourns the loss of William S. Mason, PhD, an internationally influential scientist dedicated to the study of hepatitis B and longtime friend of the Hepatitis B Foundation, who passed away Sept. 19. An emeritus professor at Fox Chase Cancer Center in Philadelphia, Dr. Mason and his colleague Jesse Summers, PhD, discovered how the hepatitis B virus replicates, which is a process called reverse transcriptase that is the basis of the action of all oral hepatitis B drugs today. For that discovery and related work, the Hepatitis B Foundation awarded Dr. Mason and Dr. Summers, a University of New Mexico professor, the Baruch S. Blumberg Prize for Research in 1999. Dr. Mason also was a longtime scientific advisor to the Hepatitis B Foundation and its research arm, the Baruch S. Blumberg Institute. “Bill Mason was one of the pillars of the hepatitis B research community and a genuine thought leader,” Timothy Block, PhD, co-founder, board executive chair and former president of the Hepatitis B Foundation and its Blumberg Institute. “Bill had high scientific standards, and was truly gracious and generous.” Dr. Mason was among the organizers of the annual International HBV Meeting, which currently is being held in Paris. At the meeting today (Sept. 21), fellow scientists celebrated his legacy with a discussion about his work and life. Bill Mason asking questions of a speaker at the 2013 International HBV Meeting in Shanghai. Stephan Urban, PhD, head of Translational Virology Heidelberg University Hospital and globally prominent researcher in hepatitis B and D, said Dr. Mason was a leader in their field. “His contributions were tremendous, not only his discovery of new hepadnaviruses but how they can be eliminated from the liver of their hosts,” Dr. Urban said. “Bill Mason was a very critical thinker and challenged his colleagues. He was highly respected and when he stood up to a question at our conferences, people listened.” Jesse Summers, PhD, who was Dr. Mason's research partner said, "Bill generated much affection among his colleagues by contributing so positively, yet selflessly, to knowledge in basic research, which can be a very competitive endeavor. No doubt Bill must have had this attitude in everything he did." Dr. Mason earned a bachelor’s in mathematics in 1965 at Stevens Institute of Technology and a doctorate in biophysics from the University of Chicago in 1971. He conducted research as a Postdoctoral Fellow at the University of Southern California during 1971-1973. You can read more about Dr. Mason here.
https://www.hepb.org/news-and-events/news-2/hepatitis-b-foundation-mourns-bill-mason-an-accomplished-scientist-whose-discovery-led-to-current-treatments-for-hepatitis-b/ -
The Social impact of Living With Hepatitis B
Social impact: Many respondents reported being impacted socially by hepatitis B in different ways, ranging from feeling avoided to feeling that their family and personal relationships have been negatively affected by their diagnosis. Findings: 60% felt others avoid them. 43% try to avoid others (self-isolate). 48% said having hepatitis B negatively affected their relationships with family and friends. 32% didn’t share their diagnosis with loved ones for fear of being treated differently. One participant said “… I haven't been in a romantic relationship for years and years and years, and you know that certainly would be scary if I met somebody, to tell them.” Take action: Please know that: Hepatitis B does not define who you are or what you can do. People with hepatitis B can have loving, fulfilling relationships, without fear of transmitting the virus to loved ones. It is important to have a support network to help you through your hepatitis B journey. Disclosing your hepatitis B status can be difficult, but there is help! Join HepBCommunity.org to talk with others and ask questions. Before discussing your hepatitis B with others, prepare yourself with information at www.hepb.org.
https://www.hepb.org/resources-and-support/patient-facing-infographics/the-social-impact-of-living-with-hepatitis-b/ -
Spanish
Bienvenido al capítulo en español del sitio web de la Fundación Hepatitis B La hepatitis B se conoce como una enfermedad silenciosa y la mayoría de las personas ni siquiera saben que están infectadas. Este sitio web contiene información sobre prevención, diagnóstico y control de la hepatitis B. Lo alentamos a que comparta esta información con sus amigos, familiares y demás personas en su comunidad. A continuación se indican algunos aspectos importantes a tener en cuenta sobre la hepatitis B: La hepatitis B no se hereda, la produce un virus. Existe una vacuna segura que lo protegerá de la hepatitis B de por vida. Existe una prueba de sangre sencilla para diagnosticar la hepatitis B. Hay opciones de tratamiento. La hepatitis B es una enfermedad global La hepatitis B puede infectar a cualquier persona de cualquier edad o etnia, pero las personas que habitan en regiones del mundo donde la hepatitis B es común, como Asia, zonas de África y América del Sur, el este de Europa y el Medio Oriente, corren un riesgo mucho más alto de infectarse. La hepatitis B también es común entre los estadounidenses nacidos (o cuyos padres nacieron) en esas regiones. Existen cientos de millones de personas en todo el mundo que tienen hepatitis B. La mayoría de estas personas ni siquiera saben que están infectadas y no tienen síntomas. Sin embargo, hay muchos aspectos importantes que debería saber. Realizarse una prueba para detectar la hepatitis B puede salvarle la vida. Si sabe que tiene hepatitis B, puede tomar decisiones sobre su estilo de vida para mantener su hígado saludable y consultar con un médico para que lo ayude a controlar el virus y evitar el daño hepático. La Fundación Hepatitis B es una organización nacional sin fines de lucro, dedicada a encontrar una cura y a ayudar a mejorar la calidad de vida de todas las personas afectadas por la hepatitis B a nivel mundial, a través de la investigación, educación y defensa del paciente. Aviso legal: la información que se proporciona en este sitio web solo tiene fines educativos. La Fundación Hepatitis B no es una organización médica. Por favor hable con su médico o con un proveedor de atención médica calificado para obtener atención médica y asesoramiento personal. Welcome to the Spanish Chapter of the Hepatitis B Foundation Website Hepatitis B is known as a silent disease, and most people don’t even know they are infected. This website contains information about preventing, diagnosing and managing hepatitis B. We encourage you to share this information with your friends, family and others in your community. Here are some important things to remember about hepatitis B: Hepatitis B is not inherited - it is caused by a virus. There is a safe vaccine which will protect you from hepatitis B for life. There is a simple blood test to diagnose hepatitis B. There are treatment options. Hepatitis B is a Global Disease Hepatitis B can infect any person of any age or ethnicity, but people from parts of the world where hepatitis B is common, such as Asia, parts of Africa and South America, Eastern Europe, and the Middle East, are at much higher risk for getting infected. Hepatitis B is also common among Americans who were born (or whose parents were born) in these regions. There are hundreds of millions of people worldwide who have hepatitis B. Most people don’t even know they are infected, and don’t have symptoms – but there are many important things you should know. Getting tested for hepatitis B can save your life. If you know you have hepatitis B, you can make lifestyle choices to keep your liver healthy and you can see a doctor to help manage the virus and prevent liver damage. The Hepatitis B Foundation is a national nonprofit organization dedicated to finding a cure and helping to improve the quality of life for all those affected by hepatitis B worldwide through research, education and patient advocacy. Disclaimer: The information that is provided on this website is for educational purposes only. The Hepatitis B Foundation is not a medical organization. Please talk to your doctor or a qualified health care provider for personal medical care and advice.
https://www.hepb.org/languages/spanish/ -
Arabic
Welcome to the Arabic Chapter of the Hepatitis B Foundation Website Hepatitis B is known as a silent disease, and most people don’t even know they are infected. This website contains information about preventing, diagnosing and managing hepatitis B. We encourage you to share this information with your friends, family and others in your community. Here are some important things to remember about hepatitis B: Hepatitis B is not inherited - it is caused by a virus. There is a safe vaccine which will protect you from hepatitis B for life. There is a simple blood test to diagnose hepatitis B. There are treatment options. Hepatitis B is a Global DiseaseHepatitis B can infect any person of any age or ethnicity, but people from parts of the world where hepatitis B is common, such as Asia, parts of Africa and South America, Eastern Europe, and the Middle East, are at much higher risk for getting infected. Hepatitis B is also common among Americans who were born (or whose parents were born) in these regions. There are hundreds of millions of people worldwide who have hepatitis B. Most people don’t even know they are infected, and don’t have symptoms – but there are many important things you should know. Getting tested for hepatitis B can save your life. If you know you have hepatitis B, you can make lifestyle choices to keep your liver healthy and you can see a doctor to help manage the virus and prevent liver damage. The Hepatitis B Foundation is a national nonprofit organization dedicated to finding a cure and helping to improve the quality of life for all those affected by hepatitis B worldwide through research, education and patient advocacy. Disclaimer: The information that is provided on this website is for educational purposes only. The Hepatitis B Foundation is not a medical organization. Please talk to your doctor or a qualified health care provider for personal medical care and advice مرحبًا بك في قسم اللُّغة العَرَبِيَّة للموقع الإلكترونيّ لمؤسسة التهاب الكبد ب يُعرف التهاب الكبد "ب" بالمرض الصامت، ولا يعرف أغلب الأشخاص حتى أنهم مصابون به. يتضمن هذا الموقع معلومات عن تشخيص التهاب الكبد "ب" وكيفية الوقاية منه وطرق علاجه. ونحن نشجعك على مشاركة هذه المعلومات مع أصدقائك وعائلتك والآخرين في مجتمعك. فيما يلي بعض الأمور المهمة التي يجب تذكرها عن التهاب الكبد "ب": .مرض التهاب الكبد "ب" ليس وراثيًا، وإنما ينتج عن العدوى بفيروس .يتوفر لقاح آمن يحميك من الإصابة بالتهاب الكبد "ب" مدى الحياة ."يوجد اختبار دم بسيط لتشخيص التهاب الكبد "ب .تتوفر خيارات للعلاج التهاب الكبد "ب" مرض عالمي يمكن أن يصيب التهاب الكبد "ب" أي شخص في أي عُمر أو من أي عِرق، ولكن الأشخاص من مناطق معينة من العالم التي يكون فيها التهاب الكبد "ب" شائعًا، مثل آسيا وأجزاء من إفريقيا وأمريكا الجنوبية وأوروبا الشرقية والشرق الأوسط، هم أكثر عرضة للإصابة بهذا المرض. التهاب الكبد "ب" شائع أيضًا بين الأمريكيين الذين ولدوا فيهذه المناطق (أو ولد آباؤهم أو أمهاتهم فيها). هناك مئات الملايين من الأشخاص المصابين بالتهاب الكبد "ب" في جميع أنحاء العالم. ولا يَعرف معظم الأشخاص حتى أنهم مصابون به ولا يعانون من أي أعراض - ولكن هناك العديد من الأمور المهمة التي يجب معرفتها. يمكن لفحص التهاب الكبد "ب" أن ينقذ حياتك. إذا كنت تعرف أنك مصاب بالتهاب الكبد "ب"، يمكنك اتخاذ خيارات نمط حياة مختلفة للحفاظ على صحة الكبد، ويمكنك زيارة الطبيب لمساعدتك في علاج الفيروس ومنع تلف الكبد. إن مؤسسة "هيباتايتس بي فاونديشن" (Hepatitis B Foundation) هي مؤسسة وطنية غير ربحية مخصصة لتوفير علاج للمرض والمساعدة على تحسين نوعية الحياة لجميع المصابين بفيروس التهاب الكبد "ب" في جميع أنحاء العالم من خلال البحث والتعليم ودعم المرضى. إخلاء مسؤولية: المعلومات الواردة بهذا الموقع هي لأغراض تعليمية فقط. إن مؤسسة Hepatitis B Foundation ليست مؤسسة طبية، لذا يرجى التحدث إلى طبيبك أو مقدم رعاية صحية مؤهل للحصول على المشورة والرعاية الطبية الشخصية. مرحبًا بك في قسم اللُّغة العَرَبِيَّة للموقع الإلكترونيّ لمؤسسة التهاب الكبد ب
https://www.hepb.org/languages/arabic/ -
Our Research Institute
Our research program is bringing hope through the work of scientists at the Baruch S. Blumberg Institute. We sponsor activities that help keep the national research focus on hepatitis B and promote innovative scientific exchange among academia, industry and government. Baruch S. Blumberg Institute The Baruch S. Blumberg Institute is an independent 501(c)(3) nonprofit research institute that was established in 2003 by the Hepatitis B Foundation to advance its research mission. The Blumberg Institute supports programs dedicated to drug discovery, biomarker discovery and translational biotechnology around common research themes such as chronic hepatitis, liver disease, and liver cancer in an environment conducive to interaction, collaboration and focus. With more than 30 scientists, the Blumberg Institute may now be the largest group of nonprofit researchers working on hepatitis B in the world. To learn more about the Baruch S. Blumberg Institute, visit www.blumberginstitute.org.
https://www.hepb.org/research-and-programs/research-for-a-cure/
