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If You Have Hepatitis B, Donating Your Blood May Change the Face of Hepatitis B Testing.
The Hepatitis B Foundation has partnered with Plasma Services Group to educate people living with Hepatitis B about the critical need for blood donation. This is not like the local blood drives you always hear about. Instead, Plasma Services Group focuses on specialty plasma collection which supports the making of diagnostic tests used in labs around the world. The demand for HBV testing grows every year, but access to those tests is not assured. As you know, only 25% of people in the U.S. and 10% of people worldwide with Hepatitis B have been diagnosed. With your help, we can reduce those real-life barriers to Hepatitis B testing and improve lives. Follow the link. How do I donate? Donating your blood to Plasma Services Group is easy. After you complete this form, they will reach out to you if you are a good candidate for blood donation. If chosen, they will send a phlebotomist to your home to complete the blood-draw. PSG compensates participants financially as a thank you for the trust, time and efforts associated with donation. This program is only available to U.S. residents who are preferably in the Northeast. You must be 18 years of age or older and weight 110 pounds or more. You must be living with chronic Hepatitis B, which means you have had Hepatitis B for over 6 months. Why this is important to the future of Hepatitis B? As you may know, access to good healthcare isn’t always easy. By creating new blood tests, we can help diagnose Hepatitis B more reliably which helps more people get into care and manage their hepatitis B. Your blood donation could directly impact the detection, care and quality of life for millions of people living with hepatitis B who have not been diagnosed yet, as well as those who are managing their care on a daily basis. Despite the large population of people living with hepatitis B, it is hard for companies that source biological raw materials to recruit donors. Most people are unaware of the large amount of blood plasmas that
http://www.hepb.org/blog/hepatitis-b-donating-blood-may-change-face-hepatitis-b-testing/ -
Year of the Tiger – Strength During a New Hepatitis B Diagnosis
Happy Lunar New Year! This year is the Year of the Tiger. The Tiger is a symbol of strength and bravery. Let’s go into this Lunar New Year with strength and bravery. When we are first diagnosed with a health condition, it just does not affect us physically, but mentally and emotionally. Many of us experience fear, anger, sadness, depression, anxiety, and powerlessness. Being diagnosed with hepatitis B can be scary – you might not feel strong or brave, and that is okay! The great news is that you can live a long and healthy life with hepatitis B. Anger is a natural emotion we might experience when we are first diagnosis with hepatitis B. You might ask yourself: how did this happen to me, and why did this happen to me? It is normal to feel this way, you just got unexpected news. You might feel anger or hostility to our parents or lovers who also did not know they had the virus and passed it on to us. Talk about your anger and frustrations with a close friend or a professional counselor. You can also use healthy coping mechanisms like exercising or meditation. After we process our anger, it is important to inform close contacts (sexual partners, people who live in the same household) of your hepatitis B status so they can get tested, and vaccinated if necessary. Sometimes this anger can turn into sadness. Prolonged sadness is also a natural emotion you can experience when you find out you are newly with hepatitis B. If you feel this prolonged sadness, anxiety, or fear, or sleeplessness, it is time to talk to someone who can help. Our fears and anxieties can sometimes overwhelm us because we do not know what is going to happen next, but know you have a support system. If you need support, you can join Hep B Community. This online group is a global peer-led, volunteer-driven forum to support to those living with and affected by hepatitis B. They are dedicated to connecting people affected by hepatitis B with each other and with verified experts in the field, who
http://www.hepb.org/blog/year-of-tiger/ -
#Tri4ACure: From Hepatitis B Diagnosis to Advocating for a Cure
Meet Edwin Tan - a 29-year-old mechanical design engineer from Minneapolis, Minnesota! In 2014, Edwin was diagnosed with hepatitis B. Like many others living with hepatitis B, his diagnosis was a shock. Before his diagnosis, all he knew was that he was banned from giving blood to the Red Cross, but no one had explained the reason why. A routine blood test provided no explanations either, so his doctor decided to test for hepatitis B. The test revealed that Edwin was living with chronic hepatitis B. After his diagnosis, Edwin decided to learn all that he could about the infection. Through his research, he found that one of the best ways to keep his liver healthy was through small lifestyle changes. Edwin began to pursue healthier life choices by increasing the amount of exercise he was getting and paying closer attention to his diet. Although he loved craft beer, he knew that drinking could be extremely dangerous to those with liver infections, so he willingly gave up all alcohol. Edwin’s dedication to a more active lifestyle led him to challenge himself by competing in local races and triathlons. Edwin’s journey led him to realize that there is a lack of awareness about hepatitis B. He noticed that the stigmas facing those living with hepatitis B could take a physical and mental toll on an individual and impact how they viewed themselves. Edwin’s observations inspired him to reach out to the Hepatitis B Foundation to raise money and awareness for hepatitis B research, patient outreach, and education. Since his passion for racing was discovered due to his commitment to health after his diagnosis, it seemed appropriate for him to use his love of sports to fundraise for hepatitis B awareness and research! He hopes that his athletic achievements help others living with hepatitis B to realize that they are more than their infection. Now, Edwin is training for a series of six races—triathlons, a
http://www.hepb.org/blog/tri4acure-hepatitis-b-diagnosis-advocating-cure/ -
World Immunization Day! Hepatitis B Vaccine
… D and help prevent liver cancer! References: https://medgenomelabs.wordpress.com/2015/11/10/world-immunization-day/
http://www.hepb.org/blog/world-immunization-day-hepatitis-b-vaccine/ -
Shop Carefully for Lowest-Cost Hepatitis B Drugs When Signing Up for Medicare by Dec 7
Image courtesy of Witthaya Phonsawat at FreeDigitalPhotos.net By Christine Kukka With the cost of healthcare and prescription drugs soaring, it’s important for people age 65 and older who live with hepatitis B to shop for Medicare coverage carefully before they sign up by Dec. 7, especially if they need costly antivirals and frequent lab tests. As we age, our immune system weakens and loses its ability to suppress our hepatitis B infection. We may notice a gradual rise in our viral load (HBV DNA) and/or our liver enzymes (ALT/SGPT), which indicate liver damage. We may also experience other medical conditions, such as cancer or arthritis that require immune-suppressing drugs that unfortunately enable our hepatitis B to reactivate. To lower our viral load and reduce the risk of liver damage, we’ll need antivirals, and they’re not cheap. Medicare recipients must shop carefully for the most affordable plan. Here are the three key Medicare coverage areas: Part A is free. It covers most of hospital and nursing home care, however you still pay for some deductibles and copays. For example, if you go to a hospital for a liver biopsy, you will pay a portion of that cost if you only have Part A. Part B covers doctor visits and lab tests, and it costs about $150 a month and increases based on your income. There is a deductible of $166 a year and you pay a 20 percent copay for many services. Instead of selecting Part B, you may instead choose a private or employer-sponsored Medicare advantage plan. Part D covers your drug costs and it’s optional, but if you’re on antivirals, interferon or other medications, it important that you have drug coverage under this or a Medicare Advantage plan (such as HMOs or PPOs) that cover all Medicare benefits including drugs. If you have a low income, you may be eligible for assistance to help pay for your Part D plan. Image courtesy of Ambro at FreeDigitalPhotos.net It is critical that you shop around before selecting a drug plan. Just
http://www.hepb.org/blog/shop-carefully-lowest-cost-hepatitis-b-drugs-signing-medicare-dec-7/ -
Hepatitis B Foundation mourns Bill Mason, an accomplished scientist whose discovery led to current treatments for hepatitis B
Dr. Mason was long-time scientific and medical advisor to the Foundation. Doylestown, Pa., Sept. 21, 2022 – The Hepatitis B Foundation mourns the loss of William S. Mason, PhD, an internationally influential scientist dedicated to the study of hepatitis B and longtime friend of the Hepatitis B Foundation, who passed away Sept. 19. An emeritus professor at Fox Chase Cancer Center in Philadelphia, Dr. Mason and his colleague Jesse Summers, PhD, discovered how the hepatitis B virus replicates, which is a process called reverse transcriptase that is the basis of the action of all oral hepatitis B drugs today. For that discovery and related work, the Hepatitis B Foundation awarded Dr. Mason and Dr. Summers, a University of New Mexico professor, the Baruch S. Blumberg Prize for Research in 1999. Dr. Mason also was a longtime scientific advisor to the Hepatitis B Foundation and its research arm, the Baruch S. Blumberg Institute. “Bill Mason was one of the pillars of the hepatitis B research community and a genuine thought leader,” Timothy Block, PhD, co-founder, board executive chair and former president of the Hepatitis B Foundation and its Blumberg Institute. “Bill had high scientific standards, and was truly gracious and generous.” Dr. Mason was among the organizers of the annual International HBV Meeting, which currently is being held in Paris. At the meeting today (Sept. 21), fellow scientists celebrated his legacy with a discussion about his work and life. Bill Mason asking questions of a speaker at the 2013 International HBV Meeting in Shanghai. Stephan Urban, PhD, head of Translational Virology Heidelberg University Hospital and globally prominent researcher in hepatitis B and D, said Dr. Mason was a leader in their field. “His contributions were tremendous, not only his discovery of new hepadnaviruses but how they can be eliminated from the liver of their hosts,” Dr. Urban said. “Bill Mason was a very critical thinker and challenged his colleagues. He was highly respected and when he stood up to a question at our conferences, people listened.” Jesse Summers, PhD, who was Dr. Mason's research partner said, "Bill generated much affection among his colleagues by contributing so positively, yet selflessly, to knowledge in basic research, which can be a very competitive endeavor. No doubt Bill must have had this attitude in everything he did." Dr. Mason earned a bachelor’s in mathematics in 1965 at Stevens Institute of Technology and a doctorate in biophysics from the University of Chicago in 1971. He conducted research as a Postdoctoral Fellow at the University of Southern California during 1971-1973. You can read more about Dr. Mason here.
https://www.hepb.org/news-and-events/news-2/hepatitis-b-foundation-mourns-bill-mason-an-accomplished-scientist-whose-discovery-led-to-current-treatments-for-hepatitis-b/ -
The Social impact of Living With Hepatitis B
Social impact: Many respondents reported being impacted socially by hepatitis B in different ways, ranging from feeling avoided to feeling that their family and personal relationships have been negatively affected by their diagnosis. Findings: 60% felt others avoid them. 43% try to avoid others (self-isolate). 48% said having hepatitis B negatively affected their relationships with family and friends. 32% didn’t share their diagnosis with loved ones for fear of being treated differently. One participant said “… I haven't been in a romantic relationship for years and years and years, and you know that certainly would be scary if I met somebody, to tell them.” Take action: Please know that: Hepatitis B does not define who you are or what you can do. People with hepatitis B can have loving, fulfilling relationships, without fear of transmitting the virus to loved ones. It is important to have a support network to help you through your hepatitis B journey. Disclosing your hepatitis B status can be difficult, but there is help! Join HepBCommunity.org to talk with others and ask questions. Before discussing your hepatitis B with others, prepare yourself with information at www.hepb.org.
https://www.hepb.org/resources-and-support/patient-facing-infographics/the-social-impact-of-living-with-hepatitis-b/ -
Spanish
Bienvenido al capítulo en español del sitio web de la Fundación Hepatitis B La hepatitis B se conoce como una enfermedad silenciosa y la mayoría de las personas ni siquiera saben que están infectadas. Este sitio web contiene información sobre prevención, diagnóstico y control de la hepatitis B. Lo alentamos a que comparta esta información con sus amigos, familiares y demás personas en su comunidad. A continuación se indican algunos aspectos importantes a tener en cuenta sobre la hepatitis B: La hepatitis B no se hereda, la produce un virus. Existe una vacuna segura que lo protegerá de la hepatitis B de por vida. Existe una prueba de sangre sencilla para diagnosticar la hepatitis B. Hay opciones de tratamiento. La hepatitis B es una enfermedad global La hepatitis B puede infectar a cualquier persona de cualquier edad o etnia, pero las personas que habitan en regiones del mundo donde la hepatitis B es común, como Asia, zonas de África y América del Sur, el este de Europa y el Medio Oriente, corren un riesgo mucho más alto de infectarse. La hepatitis B también es común entre los estadounidenses nacidos (o cuyos padres nacieron) en esas regiones. Existen cientos de millones de personas en todo el mundo que tienen hepatitis B. La mayoría de estas personas ni siquiera saben que están infectadas y no tienen síntomas. Sin embargo, hay muchos aspectos importantes que debería saber. Realizarse una prueba para detectar la hepatitis B puede salvarle la vida. Si sabe que tiene hepatitis B, puede tomar decisiones sobre su estilo de vida para mantener su hígado saludable y consultar con un médico para que lo ayude a controlar el virus y evitar el daño hepático. La Fundación Hepatitis B es una organización nacional sin fines de lucro, dedicada a encontrar una cura y a ayudar a mejorar la calidad de vida de todas las personas afectadas por la hepatitis B a nivel mundial, a través de la investigación, educación y defensa del paciente. Aviso legal: la información que se proporciona en este sitio web solo tiene fines educativos. La Fundación Hepatitis B no es una organización médica. Por favor hable con su médico o con un proveedor de atención médica calificado para obtener atención médica y asesoramiento personal. Welcome to the Spanish Chapter of the Hepatitis B Foundation Website Hepatitis B is known as a silent disease, and most people don’t even know they are infected. This website contains information about preventing, diagnosing and managing hepatitis B. We encourage you to share this information with your friends, family and others in your community. Here are some important things to remember about hepatitis B: Hepatitis B is not inherited - it is caused by a virus. There is a safe vaccine which will protect you from hepatitis B for life. There is a simple blood test to diagnose hepatitis B. There are treatment options. Hepatitis B is a Global Disease Hepatitis B can infect any person of any age or ethnicity, but people from parts of the world where hepatitis B is common, such as Asia, parts of Africa and South America, Eastern Europe, and the Middle East, are at much higher risk for getting infected. Hepatitis B is also common among Americans who were born (or whose parents were born) in these regions. There are hundreds of millions of people worldwide who have hepatitis B. Most people don’t even know they are infected, and don’t have symptoms – but there are many important things you should know. Getting tested for hepatitis B can save your life. If you know you have hepatitis B, you can make lifestyle choices to keep your liver healthy and you can see a doctor to help manage the virus and prevent liver damage. The Hepatitis B Foundation is a national nonprofit organization dedicated to finding a cure and helping to improve the quality of life for all those affected by hepatitis B worldwide through research, education and patient advocacy. Disclaimer: The information that is provided on this website is for educational purposes only. The Hepatitis B Foundation is not a medical organization. Please talk to your doctor or a qualified health care provider for personal medical care and advice.
https://www.hepb.org/languages/spanish/ -
Arabic
Welcome to the Arabic Chapter of the Hepatitis B Foundation Website Hepatitis B is known as a silent disease, and most people don’t even know they are infected. This website contains information about preventing, diagnosing and managing hepatitis B. We encourage you to share this information with your friends, family and others in your community. Here are some important things to remember about hepatitis B: Hepatitis B is not inherited - it is caused by a virus. There is a safe vaccine which will protect you from hepatitis B for life. There is a simple blood test to diagnose hepatitis B. There are treatment options. Hepatitis B is a Global DiseaseHepatitis B can infect any person of any age or ethnicity, but people from parts of the world where hepatitis B is common, such as Asia, parts of Africa and South America, Eastern Europe, and the Middle East, are at much higher risk for getting infected. Hepatitis B is also common among Americans who were born (or whose parents were born) in these regions. There are hundreds of millions of people worldwide who have hepatitis B. Most people don’t even know they are infected, and don’t have symptoms – but there are many important things you should know. Getting tested for hepatitis B can save your life. If you know you have hepatitis B, you can make lifestyle choices to keep your liver healthy and you can see a doctor to help manage the virus and prevent liver damage. The Hepatitis B Foundation is a national nonprofit organization dedicated to finding a cure and helping to improve the quality of life for all those affected by hepatitis B worldwide through research, education and patient advocacy. Disclaimer: The information that is provided on this website is for educational purposes only. The Hepatitis B Foundation is not a medical organization. Please talk to your doctor or a qualified health care provider for personal medical care and advice مرحبًا بك في قسم اللُّغة العَرَبِيَّة للموقع الإلكترونيّ لمؤسسة التهاب الكبد ب يُعرف التهاب الكبد "ب" بالمرض الصامت، ولا يعرف أغلب الأشخاص حتى أنهم مصابون به. يتضمن هذا الموقع معلومات عن تشخيص التهاب الكبد "ب" وكيفية الوقاية منه وطرق علاجه. ونحن نشجعك على مشاركة هذه المعلومات مع أصدقائك وعائلتك والآخرين في مجتمعك. فيما يلي بعض الأمور المهمة التي يجب تذكرها عن التهاب الكبد "ب": .مرض التهاب الكبد "ب" ليس وراثيًا، وإنما ينتج عن العدوى بفيروس .يتوفر لقاح آمن يحميك من الإصابة بالتهاب الكبد "ب" مدى الحياة ."يوجد اختبار دم بسيط لتشخيص التهاب الكبد "ب .تتوفر خيارات للعلاج التهاب الكبد "ب" مرض عالمي يمكن أن يصيب التهاب الكبد "ب" أي شخص في أي عُمر أو من أي عِرق، ولكن الأشخاص من مناطق معينة من العالم التي يكون فيها التهاب الكبد "ب" شائعًا، مثل آسيا وأجزاء من إفريقيا وأمريكا الجنوبية وأوروبا الشرقية والشرق الأوسط، هم أكثر عرضة للإصابة بهذا المرض. التهاب الكبد "ب" شائع أيضًا بين الأمريكيين الذين ولدوا فيهذه المناطق (أو ولد آباؤهم أو أمهاتهم فيها). هناك مئات الملايين من الأشخاص المصابين بالتهاب الكبد "ب" في جميع أنحاء العالم. ولا يَعرف معظم الأشخاص حتى أنهم مصابون به ولا يعانون من أي أعراض - ولكن هناك العديد من الأمور المهمة التي يجب معرفتها. يمكن لفحص التهاب الكبد "ب" أن ينقذ حياتك. إذا كنت تعرف أنك مصاب بالتهاب الكبد "ب"، يمكنك اتخاذ خيارات نمط حياة مختلفة للحفاظ على صحة الكبد، ويمكنك زيارة الطبيب لمساعدتك في علاج الفيروس ومنع تلف الكبد. إن مؤسسة "هيباتايتس بي فاونديشن" (Hepatitis B Foundation) هي مؤسسة وطنية غير ربحية مخصصة لتوفير علاج للمرض والمساعدة على تحسين نوعية الحياة لجميع المصابين بفيروس التهاب الكبد "ب" في جميع أنحاء العالم من خلال البحث والتعليم ودعم المرضى. إخلاء مسؤولية: المعلومات الواردة بهذا الموقع هي لأغراض تعليمية فقط. إن مؤسسة Hepatitis B Foundation ليست مؤسسة طبية، لذا يرجى التحدث إلى طبيبك أو مقدم رعاية صحية مؤهل للحصول على المشورة والرعاية الطبية الشخصية. مرحبًا بك في قسم اللُّغة العَرَبِيَّة للموقع الإلكترونيّ لمؤسسة التهاب الكبد ب
https://www.hepb.org/languages/arabic/ -
Our Research Institute
Our research program is bringing hope through the work of scientists at the Baruch S. Blumberg Institute. We sponsor activities that help keep the national research focus on hepatitis B and promote innovative scientific exchange among academia, industry and government. Baruch S. Blumberg Institute The Baruch S. Blumberg Institute is an independent 501(c)(3) nonprofit research institute that was established in 2003 by the Hepatitis B Foundation to advance its research mission. The Blumberg Institute supports programs dedicated to drug discovery, biomarker discovery and translational biotechnology around common research themes such as chronic hepatitis, liver disease, and liver cancer in an environment conducive to interaction, collaboration and focus. With more than 30 scientists, the Blumberg Institute may now be the largest group of nonprofit researchers working on hepatitis B in the world. To learn more about the Baruch S. Blumberg Institute, visit www.blumberginstitute.org.
https://www.hepb.org/research-and-programs/research-for-a-cure/