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Fighting For Fair Treatment Access: Improved Medication Access In The U.S.
Ensuring that people with hepatitis B have access to affordable medications is one of our top priorities. If you or someone you know is currently prescribed Vemlidy (tenofovir alafenamide), entecavir, or tenofovir, we have important news that could help make your medications more affordable. Vemlidy will once again be covered under CVS Caremark The Hepatitis B Foundation, along with our network of patients, providers and partners, has successfully advocated for improved access to the hepatitis B medication Vemlidy in the US! In July 2019 CVS Caremark - one of the nation's leading pharmacy benefit managers - stopped providing coverage for Vemlidy. This decision impacted thousands of Americans who rely on this life-saving drug to manage their hepatitis B. Thanks in part to our advocacy, the company announced last week that they will resume coverage of Vemlidy for their plan members as early as October 2019! In addition, Gilead Sciences, the manufacturer of Vemlidy, is offering increased patient assistance for patients until the coverage takes effect. What's next: If you or a loved one are taking Vemlidy and have a CVS Caremark prescription plan, the date that coverage will resume depends on your plan type. On October 1, 2019, Vemlidy will be processed for those under the Advanced Control Specialty Formulary. For those with a Value Formulary, Vemlidy will be covered beginning on January 1, 2020. To offset the costs, until January 1, 2020, Gilead Sciences will provide $1,000 a month (for up to $5,000) to offset the costs of treatment. Those interested can go to Gilead's website and apply for a co-pay card ; insurance is not needed. Low-cost options for patients on entecavir and tenofovir n June 2019, the Hepatitis B Foundation partnered with Rx Outreach , a nonprofit mail order pharmacy, to offer two of the most common hepatitis B medications at low cost to eligible patients. Eligible individuals can get a 30-day supply of tenofovir for $25 or a
http://www.hepb.org/blog/fighting-fair-treatment-access-vemlidy-will-covered-cvs-caremark/ -
Journey to the Cure: Where Can I Find Hep B Info Online? ft. Maureen Kamischke
… Kamischke: So, I think social media is a great way to reach out to different audiences. I think it’s a great way to get the messages out. You know, you can put messages out; you can link back to different parts of our website that really need to be featured and highlighted so that there are areas of what people want to learn more about; and then of course, if you are really interested in the most recent articles in hepatitis B, it’s an easy enough to link out to those so that you are not doing the work for it. Kristine Alarcon, MPH: So, it’s just like another type of way to easily disseminate information and get it more widely available to everyone. Maureen Kamischke: Yes. Kristine Alarcon, MPH: So, you’ve made so many connections across the globe in regard to hepatitis B partnerships, so what do you think the future looks like in the elimination of hepatitis B? Maureen Kamischke: Well, I would have to say that on behalf of myself and all of our friends around the world, we’re all waiting for the cure, but until that time, there’s a lot that we can do. We have a lot of good treatments available. There’s a lot of information that needs to be disseminated. There are a lot of issues with stigma and discrimination. And hopefully, social media can help decrease the amount of stigma and discrimination by educating people, allowing them to learn more about the disease, more about the people that are living with it. It’s devastating the impact of the disease that it has on people, and this is a great way to reach out to them. Kristine Alarcon, MPH: Thank you so much for all your efforts. Be sure to join us on our next episode of “Journey to the Cure.” Just wanted to thank Maureen again for all of her time and all of her efforts in conveying such wonderful information around the world.
http://www.hepb.org/blog/journey-cure-can-find-hep-b-info-online-ft-maureen-kamischke/ -
Aflatoxin Alert: Moldy Nuts and Corn Increases Your Liver Cancer Risk 60-Times If You Have Hepatitis B
Image courtesy of YaiSirichai at FreeDigitalPhotos.net By Christine Kukka One of the biggest health threats to people living with chronic hepatitis B is a toxic, nearly invisible mold called aflatoxin found in corn, peanuts, peanut butter, almonds, Brazil nuts, walnuts and pistachios. People with hepatitis B who eat food with high levels of aflatoxins face a liver cancer risk that is 60-times above average. In addition to nuts and grains like quinoa, aflatoxin can be found in figs, milk and cheese, soybeans, dried spices and cottonseed. It is less common in rice, as long as rice is hulled, which removes aflatoxin mold. This toxic mold, produced by a fungus that grows in warm, moist climates, is found at high levels in crops grown in rural regions of sub-Saharan Africa, Southeast Asia and China, where food storage and processing is not closely regulated. Unfortunately, these regions also have high rates of hepatitis B infection. Low levels of aflatoxins are considered unavoidable in food and animal feed, even when good manufacturing practices are followed. Most countries, including the U.S., allow low amounts of aflatoxin in corn and peanuts. However, some researchers suggest even these low levels can lead to liver damage in people infected with hepatitis B who rely on diets rich in corn, nuts and grains. Image courtesy of sattva at FreeDigitalPhotos.net The U.S. Food and Drug Administration and the USDA has set “actionable limits” (a maximum tolerable level of aflatoxin) for foods like corn and peanuts in order to limit how much aflatoxin reaches the human food chain and livestock feed. "Chemical methods (to remove aflatoxins) have been developed for peanuts, corn, cottonseed, various tree nuts, and animal feeds," according to the FDA's Bad Bug Book's chapter on aflatoxin. "Chemical methods for aflatoxin in milk and dairy products are far more sensitive than for the above commodities because the aflatoxin (in animals) is usually found at a much
http://www.hepb.org/blog/aflatoxin-alert-moldy-nuts-corn-increases-liver-cancer-risk-60-times-hepatitis-b/ -
Make a Vine Video with #HepBUnite for the 2016 Hepatitis B Awareness Campaign!
How do you unite for hepatitis B? VINE TO WIN! Join Hep B United for a national hepatitis B awareness campaign. Create an action-oriented awareness message about hepatitis B through a six-second Vine video! Hep B United will use selected video entries in its social media efforts in May 2016 to help promote Hepatitis Awareness Month. Your video could be included in its national awareness campaign! Eligibility: Anyone and everyone may participate! You do not have to be a member of Hep B United or any organization. What to Do: Use Vine to create a six-second video (click for example) focusing on the 2016 theme “#HepBUnite: How you unite for hepatitis B.” You can create your video alone, or with a group. Your message should focus on how you are united around hepatitis B. You could highlight hepatitis B prevention activities that you participate in, or feature a key fact about hepatitis B in your video. Although not required, Hep B United encourages you to use the materials available from the Know Hepatitis B campaign! How to Enter: Between April 11 and April 29, post your video to either Vine, Facebook or Twitter. Be sure to include the hashtag “ #hepbunite” and tag @HepBUnited. Submit your video link with your name and contact information by e-mail to connect@hepbunited.org. Contest Entry Requirements Each video must be original. Each video must include the hashtag “#hepbunite” and tag @HepBUnited on Twitterand/or Facebook in order to track the videos. Videos should not include any material that would require the consent of any third party or violate any copyright, privacy right, or any other right of a third party. If used, Know Hepatitis B campaign materials should be used in their entirety and retain the CDC and HBU logos. Submissions including offensive language, imagery or themes will be excluded from the competition. Be Creative and Have Fun! Be creative to get across your hepatitis B
http://www.hepb.org/blog/make-a-vine-video-with-hepbunite-for-the-2016-hepatitis-b-awareness-campaign/ -
Clinical Trials Webinar -What YOU need to know!
Why do we have clinical trials? What is involved with clinical trial participation? How do I find a trial that's right for me? Find out by listening to this webinar from Liver Cancer Connect, a dedicated program of the Hepatitis B Foundation. Presenters Jill McNair of the Center for Information & Study on Clinical Research Participation, and Katelyn Levy, BS, clinical research coordinator at Johns Hopkins Suburban Hospital, explain what clinical trials are and answer frequently asked questions about participating in a trial. https://www.youtube.com/watch?v=IxsubEmdNSE&feature=youtu.be Please refer to our Clinical Trials webpage for clinical trials related to hepatitis B, and liver cancer.
http://www.hepb.org/blog/clinical-trials-webinar/
