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  • CHIPO Partner Highlight: Hepatitis Outreach Network

    … model to a wider audience would be a significant step forward in addressing viral hepatitis disparities in our community.  Thank you so much for taking the time to speak with me today and for sharing more about the great work HONE has done and will continue into the future! 

    http://www.hepb.org/blog/chipo-partner-highlight-hepatitis-outreach-network/
  • Celebrating Liver Cancer Awareness Month: A Conversation with the American Liver Foundation

    … launched a program called Project ECHO for medical professionals and providers to learn more about MASLD, or fatty liver disease, and we're going to continue that the rest of this year, every month, and continue it hopefully in 2025. And of course, programs for advocacy and information for patients, including educating patients and their families by creating public awareness campaigns about liver wellness and disease prevention, are our focus. I currently oversee a few different initiatives. One of them is our liver cancer initiatives which include a two-day liver cancer conference that we've held since 2020, called the Educated Patient for patients and caregivers. This year we're trying something new where we are focusing on a liver cancer series that we actually kicked off in September, specifically for pediatric liver cancer, because September was Pediatric Cancer Awareness Month. In October, we actually have two programs that will be happening for liver cancer and then we have one that will be ending in November. The other couple programs that I've overseen include our Rare Liver Disease Summit, our autoimmune forum, and our pediatric initiatives. I also oversee some of our collaborations with the Center for Disease Control Viral Hepatitis Division. I have worked with them for the last three or four years on programs, including hepatitis C barriers to treatment in community-focused primary care. Is there anything in particular or maybe a couple of things that you enjoy most about your work? I really enjoy working with the partners, and our partner organizations. Hepatitis B, hepatitis C, and other liver diseases affect so many people, especially in diverse communities and that's also something that I'm glad that we have had the opportunity to focus on that under our CEO Lorraine Stiehl, who's made that a priority. Liver disease, of course, affects so many different people and to be intentional about making sure that we focus on these particular groups where

    http://www.hepb.org/blog/celebrating-liver-cancer-awareness-month-conversation-american-liver-foundation/
  • Storyteller Insights: Cosmin's Story

    … wanted. In addition to my mother’s health issues, I faced a tried period while undergoing medical tests for hepatitis B and later for hepatitis Delta, receiving results that didn’t provide the reassurance I had hoped for.  Shortly thereafter, I embarked on another chapter in my medical journey, another two years of Interferon treatment. Those were arduous times, marked by physical and emotional trials. Through it all, my wife remained my unwavering pillar of strength. Her support was a beacon of light in the darkness that seemed to loom. During that time, our sweet girl was quite young, and I am certain it must have been a challenging time for my wife. Sincerely, the weight of the situation often overwhelmed me.    Behind the backdrop of these challenging events, my mother remained a beacon of optimism. Despite her health problems and the relentless complications that plagued her, she carried herself with unwavering hope. Sadly, at the tender age of 49, my mother left this world, leaving me with a plethora of unanswered questions. This sad moment with my mother happened a few months after I completed interferon treatment.  In the aftermath of those challenging times, a dormant dream from my childhood began to stir within me. I summoned the courage to reconnect with the aspirations that had been shelved for so long. It was a journey into the depths of my own emotions, and it led me to a profound realization. I decided to embark on a path that related to my heart—a journey into the field of hepatitis B. It was a choice fueled by empathy, born from my own trials and the desire to make a meaningful impact in the lives of others facing similar struggles. In this newfound purpose, I unearthed not just my cherished childhood dream but also a profound calling. It's a path that allows me to pay tribute to my past and to perpetuate the strength and empathy that have been the pillars of my personal journey.  In 2019, I made the decision to launch an initiative,

    http://www.hepb.org/blog/storyteller-insights-cosmins-story/
  • Action Alert! Urge Your House Representative To Support Increased Hepatitis B and C Funding!

    … contacting Helen Beaudreau in Representative Honda’s office or Scott Goldstein in Representative Johnson’s office. Text of "Dear Colleague" letter: The Honorable Tom Cole Chairman Subcommittee on Labor, Health and Human Services United States House Washington, D.C., 20515 The Honorable Rosa DeLauro Ranking Member Subcommittee on Labor, Health and Human Services United States House Washington, D.C., 20515 Dear Chairman Cole and Ranking Member DeLauro: As you begin deliberations on the Fiscal Year 2016 Labor, Health and Human Services, Education, and Related Agencies Appropriations bill, we respectfully request that you allocate $62.8 million for the Division of Viral Hepatitis (DVH) at the Centers for Disease Control and Prevention (CDC), consistent with the President’s FY2016 budget request and an increase of $31.5 million over the FY2015 level. The CDC’s 2010 professional judgment (PJ) budget recommended $90.8 million annually from FY2011-FY2013, $170.3 million annually from FY2014-FY2017, and $306.3 million annually from FY2018-FY2020 in order for DVH to comprehensively address the viral hepatitis epidemics. While past increases have been helpful, these have only been small steps toward building a more comprehensive response to viral hepatitis. Our recommendation of $62.8 million is in line with the needs determined by the PJ and the goals of the Viral Hepatitis Action Plan, but pales in comparison to the CDC’s PJ. T

    http://www.hepb.org/blog/viral-hepatitis-action-alert-3/
  • Thomas Tu, PhD

    Group Leader, Storr Liver Centre, Westmead Institute for Medical Research, Australia  Dr. Thomas Tu is a molecular biologist focusing on the persistence of cccDNA and the pathogenesis linked to integrated HBV DNA. He is particularly passionate about developing a HBV cure and mitigating the associated liver cancer, as he himself lives with chronic Hepatitis B.   Dr. Tu is the Secretary for Australian Centre for Hepatitis Virology (ACHV), the premier Australian society for hepatitis virus researchers; a board member of Hepatitis Australia, guiding the strategic direction of the peak national advocacy body for people with liver disease; and the founder and Director of HepBCommunity.org (a global support network for people affected with HBV), guiding people through their HBV diagnosis and linking them with trustworthy scientific and medical information.  Read the journal picks of the month from our Emerging Scholars Scientific and Medical Advisory Board here.  

    https://www.hepb.org/news-and-events/reports/emerging-scholars-scientific-and-medical-advisors/thomas-tu-phd/
  • Viral Hepatitis Action Alert!

    Representatives Mike Honda, Hank Johnson, and Judy Chu are asking all House Representatives to sign an important letter supporting increased funding for viral hepatitis programs in the Fiscal Year 2015 appropriations bill (see text of letter below) Please take a few minutes before March 25th to call your House Representative’s office in Washington, DC and ask/him to sign this letter. You can reach your Representative through the Congressional Switchboard at (202) 224-3121. Ask to be connected to your Representative. Once you are connected to the office, ask to speak to the staff person who handles health care issues. Whether you speak to that person live or leave a voicemail, tell them (1) your name, (2) where you live and that you are a constituent, (3) that you would like the Representative to sign the “Dear Colleague” letter from Representatives Honda, Johnson, and Chu supporting increased funding for viral hepatitis and (4) a brief message why this issue is important to you. Tell them they can sign the letter by contacting Kelly Honda in Representative Honda’s office, Scott Goldstein in Representative Johnson’s office, or Linda Shim in Representative Chu’s office. The deadline for Representatives to sign is March 25th. Text of “Dear Colleague” letter from Representatives Honda, Johnson, and Chu: Support Funding for Viral Hepatitis March XX, 2014 The Honorable Jack Kingston Chairman Subcommittee on Labor, Health and Human Services United States House Washington, D.C., 20515 The Honorable Rosa DeLauro Ranking Member Subcommittee on Labor, Health and Human Services United States House Washington, D.C., 20515 Dear Chairman Kingston and Ranking Member DeLauro: As you begin deliberations on the Fiscal Year 2015 Labor, Health and Human Services, Education, and Related Agencies Appropriations bill, we would like to respectfully request that you allocate $47.8 million for the Division of Viral Hepatitis (DVH) at the Centers for Disease Control and

    http://www.hepb.org/blog/viral-hepatitis-action-alert-2/
  • Contact Us

    The Hepatitis B Foundation is the world’s leading nonprofit dedicated to hepatitis B and liver cancer, engaged in research, education and patient advocacy. Founded in 1991, the Hepatitis B Foundation is based in Doylestown, Pa., with offices in Philadelphia and Washington, D.C. Hepatitis B Foundation, 3805 Old Easton Road, Doylestown PA 18902 USA  Phone: +1 215-489-4900 (U.S.) We answer phones 9 a.m.-5 p.m. Eastern (New York City) Time. If calling outside of our business hours, please leave a call-back number with your message. Please note that we are unable to return international calls, so be sure to call back during our business hours. Email: info@hepb.org Please include your city and country to help us provide personalized information. Submit your questions directly to our Patient Helpline via email at info@hepb.org, or call us at 215-489-4900. Please engage with us on social media!

    https://www.hepb.org/contact-us/
  • Tuya's Story

    After her own family’s experience of immigrating to the United States from Mongolia and their relief at moving to a community where friends could point them to resources, Tuya saw the struggles of other newcomers and decided she wanted to help. She found work with a program that does hepatitis B and C outreach, testing, and treatment referral for immigrants in the greater Washington, D.C. area and has been gratified to see the community’s growing trust in her, her organization, and the medical system in the U.S.  Tuya's story is available in English and Mongolian.   English   Mongolian

    https://www.hepb.org/research-and-programs/patient-story-telling-project/tuyas-story/
  • Chenda's Story

    Recently engaged and waiting to join her fiancé in America, Chenda got a blood test, only to find out that she has hepatitis B. Upon seeing a doctor in Cambodia, she was inspired to learn how to protect her family and lover from the disease. Hepatitis B no longer haunts Chenda; she transformed herself from survivor to helper and is ready to make sure her soon-to-arrive first child is vaccinated against the virus. Chenda's story is available in English and Khmer.   English   Khmer

    https://www.hepb.org/research-and-programs/patient-story-telling-project/chendas-story/
  • Frequently Asked Questions about Hepatitis B

    Below are links to some of our most commonly asked questions.  What is hepatitis B? Why is hepatitis B so dangerous? Is there a cure for hepatitis B?  What treatments (medicines) are available for chronic hepatitis B? If the currently approved hepatitis B drugs do not provide a cure, then how are they helping? What can I do if I live in the U.S. and the insurance co-pay for my hepatitis B drugs costs too much for me to buy them? Is there any special diet for people living with chronic hepatitis B infection? What blood tests are important to diagnose and evaluate my hepatitis B infection?  Does everyone with chronic hepatitis B need to take medicine?  Will herbals, natural "remedies", Ayurveda or Traditional Chinese Medicine, supplements, or vitamins and minerals control hepatitis B?  If I don't need to take medicine for my hepatitis B at this time, what must I do to support my liver? Can a hepatitis B infection be prevented? How can I protect my loved ones?  Is the hepatitis B vaccine safe?  Is the hepatitis B vaccine safe during pregnancy?  Can I catch hepatitis B from the vaccine? If I started the vaccine series but didn't complete my 2nd or 3rd dose on schedule, do I have to start over? I received my vaccine years ago--am I still protected? Should I get the hepatitis B vaccine if I have a chronic HBV infection or have recovered from a past infection? Where can I get vaccinated against hepatitis B in the USA? What should I do if I am diagnosed with chronic hepatitis B? I am diagnosed with chronic hepatitis B, can I get married and have children? I am currently pregnant, and I have hepatitis B. What should I do to protect my baby?  Can I donate blood if I have hepatitis B? If I have chronic hepatitis B infection, can I hug my children, partner or friend? I’m in love, when and how do I tell my (prospective) partner that I have hepatitis B? If hepatitis B is sexually transmitted, how come my partner isn’t infected? If chronic hepatitis B is a silent disease, why do I have symptoms? Sometimes I feel sad and depressed because of my hepatitis B status, what should I do? I keep hearing about a “Functional Cure” for chronic hepatitis B, what does this mean? Liver Cancer  What is the likelihood that someone infected with hepatitis B will develop liver cancer? I’m living with hepatitis B, what should I do to reduce my risk of developing liver cancer? Clinical Trials  My country does not have a clinical trial for hepatitis B. Is it possible to travel to another country to participate?

    https://www.hepb.org/what-is-hepatitis-b/faqs/