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  • Join the Conversation at the Hep B United Summit; Watch Summit Sessions On Facebook Live!

    … in reaching new partners to increase hepatitis B screening, vaccination and linkage to care. Developing Innovative Practices in Hepatitis B Education and Screening  (Hepatitis B Foundation Facebook Live) Moderator: Catherine Freeland, MPH, Public Health Program Manager, Hepatitis B Foundation Panelists: Brandi Dobbs, FNP-BC, CNS-CH,Asian Services in Action, Inc. Karen Jiobu, Asian American Community Services Layal Rabat, MA,Asian Pacific Community in Action Xuan Phan, Mercy Housing and Human Development Share results from the Hep B United Mini Grants Program.  Day 2 – Thursday July 26 9:00 AM:   Improving Access to Hepatitis B Treatment Wayne Turner, Senior Attorney National Health Law Program (NHeLP) Sierra Pellechio, BS, CHES, Health Outreach Coordinator, Hepatitis B Foundation Lauren Su, Hepatitis B Foundation 10:30 AM: Increasing Provider Knowledge about Hepatitis B Richard Andrews, MD, MPH, Co-Chair, National Task Force on Hepatitis B MPH, and Medical Director, HOPE Clinic Amy Tang, MD, MPH, Co-Chair, National Task Force on Hepatitis B and Hepatitis B Program Director, Charles B. Wang Community Health Center 1:30 PM:   Achieving Health Equity to Eliminate Hepatitis B Facilitator: Cynthia Jorgensen Not able to join the sessions with Facebook Live? Follow the conversation on Twitter using the #Hepbunite hashtag. Follow the events, retweet and engage with event attendees and help us raise hepatitis B awareness in the U.S. and around the globe. World Hepatitis Day is July 28th, and this Summit is a terrific opportunity to share with the world what we’re doing to help those living with hepatitis B in our communities. Other popular hashtags for World Hepatitis Day, and to raise hepatitis B awareness, include: #NOhep, #KnowHepB, #WorldHepatitisDay, #WorldHepDay, #WHD2018, #FindTheMissingMillions #hepatitis, #hepatitisB, #HBV, #hepB, #justB. Connect with, follow and engage with fellow partners and advocates on twitter to keep the hep B conversation going

    http://www.hepb.org/blog/6466-2/
  • Join a Twitter Chat: Organizations Share Highlights From Hepatitis Awareness Month

    … Roundtable (NVHR) - @NVHR1 Hep Free NYC - @HepFreeNYC HBI-Minnesota/HBI-MN - @HBIMN15 End Hep C SF - @EndHepCSF Philadelphia's Hepatitis C Coalition - @Hep_Cap Confirmed Participants: Hep B United Philadelphia - @HepBunitedPhila National Association of County and Health Officials (NACCHO) - @NACCHOalerts Hep Free Hawaii - @HepFreeHawaii Hepatitis B Initiative of Washington, DC (HBI-DC) - @HBIDC Hepatitis Education Project - @HepEduProject Association of Asian Pacific Community Health Centers (AAPCHO) - AAPCHOtweets Hepatitis Delta Connect - @Hepdconnnect Center for Pan Asian Community Services (CPACS) - @CPACS Henry E. Chang - @HenryEChang Asian Pacific Community in Action (APCA) - @APCAAZ HepVu - @HepVu Charles B. Wang Community Health Center - @CBWCHC Office of HIV/AIDS & Infectious Disease Policy - @HHS_ViralHep Minnesota Department of Health - @MNhealth Center for Asian Health Equity (CAHE) - @CAHE_News HHS OASH Region II - @HHS_HealthRegII We’d love to add you or your organization to our list of confirmed participants. Email Kristine at Kristine.Alarcon@hepb.org or direct message @hepbfoundation on Twitter to add your organization, though confirmation is not necessary to participate. Are you just getting started with Twitter and want to know how to join the conversation?  Type #HepChat in the search box of the Twitter application and click on the “latest option” to follow the twitter view.                 You can prepare any questions or tweets you might have for the above topics in advance, or you can also tweet on the fly, re-tweet, or Like a tweet from the chat. The topics are labeled T1, T2, etc. so please respond/answer a specific topic by using A1, A2, etc. in front of your tweets. Remember to include the #HepChat hashtag, which is not case sensitive, in all of your tweets. Looking forward to the conversation, June 14th!

    http://www.hepb.org/blog/join-twitter-chat-national-organizations-share-highlights-hepatitis-awareness-month-strategies-successful-events-2/
  • Who is Ted Slavin? #virusappreciationday

    … Scholarship, 5(1), Skloot, R. (2010). The Immortal Life of Henrietta Lacks. Crown Publishing Group. Ted Slavin’s Story and more. Retrieved from: http://tissuerights.weebly.com/ted-slavin.html Skloot, R. (2006, Apr 16). Taking the Least of You. The New York Times Magazine. Retrieved from: http://www.nytimes.com/2006/04/16/magazine/taking-the-least-of-you.html Angsana T. (2010, Nov 9). Second Story from Ted Slavin. Retrieved from: http://angsanat.blogspot.com/2010/11/second-story-from-ted-slavin.html C, Anna. (2012, Jul 26). World Hepatitis Day: The History of the Hepatitis B Vaccine. Retrieved from: http://advocatesaz.org/2012/07/26/world-hepatitis-day-the-history-of-the-hepatitis-b-vaccine/  

    http://www.hepb.org/blog/who-is-ted-slavin/
  • Join a Twitter Chat: National Organizations Share Highlights From Hepatitis Awareness Month and Strategies for Successful Events

                Join Hep B United, the National Viral Hepatitis Roundtable, NASTAD and CDC’s Division of Viral Hepatitis for a Twitter #HepChat at 2 p.m. (EST) Thursday, June 8. The chat will highlight Hepatitis Awareness Month outreach events and allow hepatitis B and C partner organizations to share their successes, challenges and lessons learned from their efforts. Below are the Twitter Chat topic areas of discussion. Partners are invited to share images of their events in May, as well as best practices and challenges in conducting outreach events. Join the conversation with the hashtag #HepChat. T1: What community-based education, outreach & testing events did you conduct during Hepatitis Awareness Month? T2: How do you prepare for and conduct education, outreach, and testing events? T3: How do you engage key communities in the planning process? In hosting the events? T4: What educational or promotional materials do you use at your community based activities? T5: What are your processes for hepatitis data collection? T6: How do you notify and ensure people understand their test results? T7: What are your patient navigation and referral to care strategies? T8: What best practices would you share with others who might be planning their first event? T9: How can raising awareness in May and beyond address hepatitis B or C stigma? T10: What role will your organization play in eliminating hepatitis B and C in your community? Plan to share your hepatitis outreach events, successes and challenges, and pictures, or use this opportunity to ask the featured organizations questions about their work. Hosts and handles for the chat: Hep B United - @Hepbunited National Alliance of State & Territorial AIDS Directors (NASTAD) - @NASTAD National Viral Hepatitis Roundtable - @NVHR1 CDC's, Division of Viral Hepatitis - @cdchep CDC National Prevention Information Network - @CDCNPIN (Moderator) Featured participants and handles for the

    http://www.hepb.org/blog/join-twitter-chat-national-organizations-share-highlights-hepatitis-awareness-month-strategies-successful-events/
  • Twitter Chat: Partner Highlights From Hepatitis Awareness Month

    Join Hep B United, the National Viral Hepatitis Roundtable, CDC’s Division of Viral Hepatitis, and the Hepatitis B Foundation for a Twitter #HepChat Wednesday, June 15 at 2 p.m. EDT. The chat will highlight Hepatitis Awareness Month outreach events and allow hepatitis B and C partner organizations to share their successes, challenges, and lessons learned from their efforts. Below are the Twitter Chat topic areas of discussion. Partners are invited to share images of their events in May, as well as best practices and challenges in conducting outreach events. Join the conversation with the hashtag #HepChat. T1. How do you go about organizing and conducting community-based hepatitis education and outreach? T2. How do you prepare and conduct hepatitis B and C testing events? T3. What educational or promotional materials do you provide at your community activities? T4. What are your processes for hepatitis data collection? T5 How do you notify about their test results and ensure people understand them? T6. What are your patient navigation and referral-to-care strategies? T7. What best practices would you share with others who might be planning their first events? Plan to share your hepatitis outreach events, successes and challenges, and pictures, or use this opportunity to ask the featured organizations questions about their work. Featured participants and handles for the chat include: Hep B United - @Hepbunited Hepatitis B Foundation - @hepbfoundation National Viral Hepatitis Roundtable - @NVHR1 CDC's, Division of Viral Hepatitis - @cdchep HOPE Clinic - @AAHC_HOPEClinic Hepatitis B Initiative – Minnesota - @HBIMN15 Hep Free Hawaii - @HepFreeHawaii Hep Free NYC - @HepFreeNYC Liver Health Connection - @LiverConnection National Black Leadership Coalition on AIDS - @NBLCA Additional Confirmed Participants: CDC National Prevention Information Network - @CDCNPIN Coalition Against Hepatitis For People of African Origin - @CHIPO_HBV Hep B United Philadelphia -

    http://www.hepb.org/blog/join-hep-b-united-cdc-the-hep-b-foundation-and-others-for-a-twitter-chat-june-15/
  • Hepatitis B Foundation launches B the Voice Story Bank

    Doylestown, Pa., Aug. 18, 2020 – The Hepatitis B Foundation today is launching its new B the Voice Story Bank, an initiative to gather the stories of people around the world affected by hepatitis B. Documenting and sharing the impact that hepatitis B has on individuals, families and communities is essential, the Foundation believes, for continuing the momentum to find a cure for hepatitis B and to achieve the goal of global elimination by 2030. “Centering the voices of people living with hepatitis B is critical in raising awareness, combating stigma and discrimination, and encouraging more people to speak out or take action in other ways,” Rhea Racho, MPAff, the Hepatitis B Foundation’s public policy and program manager said. “That’s true whether it means getting tested for hepatitis B, talking to a doctor, educating family or community members about prevention or advocating for resources and policies to support countrywide hepatitis B elimination.” The B the Voice Story Bank builds upon the success of the Foundation’s national #justB campaign, which it launched in partnership with Story Center and the Association of Asian Pacific Community Health Organizations (AAPCHO) in May 2017.  "The #justB campaign has been a great success, based on the participation and feedback  we've gotten from the hepatitis B community, so we're thrilled to expand this effort," Chari Cohen, DrPH, MPH, senior vice president of the Hepatitis B Foundation, said. "This new component provides many more people with the chance to tell their stories about living with hepatitis B with others around the world, and the Foundation and our partners will continue sharing this compelling content through our social media and other means." The stories shared through the #justB campaign have been very valuable, Dr. Cohen says, to support advocacy and outreach efforts. The Hepatitis B Foundation’s partners, including national organizations, community-based organizations, local health departments, government and industry have made use of the stories. The #justB campaign's archive of first-person video segments is hosted here on the Hepatitis B Foundation's website. Almost 300 million people worldwide live with chronic hepatitis B, but most of their stories remain untold. Often this is due to the negative stigma surrounding the virus, fear of discrimination, lack of community awareness or understanding of the disease and lack of support for those who wish to speak out publicly about hepatitis B.  The new B the Voice Story Bank provides an online platform for people living with hepatitis B, their families, community health workers and health care providers to share their firsthand knowledge and experiences with a global audience. They can submit their stories using an online form, along with any photos and personal details they wish to share. Submissions are confidential and can be made without disclosing a person’s full identity.  Individuals are encouraged to share stories about their diagnosis, living with hepatitis B, access to care and treatment, stigma and discrimination, education and advocacy, support and caregiving, services and programs and other related topics. About the Hepatitis B Foundation: The nation’s leading nonprofit organization solely dedicated to finding a cure for hepatitis B and improving the quality of life for those affected worldwide through research, education and patient advocacy, the Hepatitis B Foundation is based in Doylestown, Pa. To learn more, go to www.hepb.org, read our blog at hepb.org/blog, follow us on Twitter @HepBFoundation, find us on Facebook at facebook.com/hepbfoundation or call 215-489-4900. To donate, contact Jean Holmes at 215-489-4900 or jean.holmes@hepb.org.

    https://www.hepb.org/news-and-events/news-2/hepatitis-b-foundation-launches-b-the-voice-story-bank/
  • HBV Vaccinations Save Lives, Reduce New Infections: National Adult Hepatitis B Vaccination Awareness Day

    Doylestown, Pa., April 30, 2020 – Only one quarter of all adults in the United States ages 19 and older are fully vaccinated against hepatitis B, despite the availability of a safe and effective vaccine for more than 30 years. Today, on National Adult Hepatitis B Vaccination Awareness Day, the Hepatitis B Foundation is calling for an increased commitment to improving adult hepatitis B vaccination coverage in the United States to reduce the number of new hepatitis B infections and hepatitis B-related deaths. National Adult Hepatitis B Vaccination Awareness Day was proposed last year on April 30 by companion resolutions H.Res. 331 and S.Res. 177. The resolutions were introduced by Rep. Hank Johnson of Georgia and Rep. Grace Meng of New York, co-chairs of the Congressional Hepatitis Caucus, and Sen. Mazie Hirono of Hawaii and Sen. Angus King of Maine. Along with supporting the designation of April 30 as Awareness Day, the resolutions recognize the importance of hepatitis B testing, vaccination and linkage to care; encourage a commitment to increasing adult HBV vaccination rates and maintaining childhood HBV vaccination rates; and promote greater awareness among providers and the general public.  As the nation is seeing increases in new hepatitis B cases tied injection drug use and the opioid crisis, understanding and addressing barriers to hepatitis B vaccination among adults has become increasingly important. Immunization rates also are low among other populations at high risk of hepatitis B, including people living with hepatitis C, HIV, kidney disease or diabetes. Just 12% of adults with diabetes ages 60 and older and only 26% of adults with diabetes ages 19 to 59 have received the complete vaccine series. Even among health care personnel, only 60% have completed the vaccine series, leaving many frontline workers susceptible to hepatitis B infection. “With hepatitis B being the number one cause of liver cancer globally, and one in four individuals with undiagnosed and unmanaged hepatitis B dying from liver cancer, cirrhosis or liver failure, we must do more to increase hepatitis B awareness and vaccination,” said Chari Cohen, DrPH, MPH, Senior Vice President of the Hepatitis B Foundation. “While there is no cure yet for hepatitis B, we have the opportunity to prevent this life-threatening disease and liver cancer deaths through vaccination.” The modern hepatitis B vaccine, which was introduced in 1985, is widely used and among the safest and most effective vaccines in the world, but it requires three doses. A new two-dose vaccine was introduced recently and is highly effective in populations that may be harder to vaccinate, such as older adults and people living with diabetes. You can read more in a new blog post from the Hepatitis B Foundation. Next week, the Foundation will be launching a new hepatitis B prevention policy program, based in Washington, D.C. The goals are to expand the Hepatitis B Foundation’s policy and advocacy initiatives and increase engagement with Congressional, federal and state health agency partners to improve hepatitis B prevention and vaccination infrastructure and strategies.

    https://www.hepb.org/news-and-events/news-2/hbv-vaccinations-save-lives-reduce-new-infections-national-adult-hepatitis-b-vaccination-awareness-day/
  • Hepatitis B Foundation Calls for Increased Resources for Hepatitis B Prevention in Response to CDC 2017 Surveillance Data Report

    DOYLESTOWN PA (September 11, 2019): The Hepatitis B Foundation is calling for increased resources to improve hepatitis B vaccination rates and educate high-risk communities, in response to newly-released viral hepatitis surveillance data from the Centers for Disease Control and Prevention (CDC). CDC released the 2017 surveillance data on September 10, showing an estimated 22,000 new acute hepatitis B cases, an increase over the previous year. Thirty-two states saw increases in reported acute hepatitis B, continuing an upward trend over the past several years, with the highest rates among non-Hispanic White adults age 40-49. These increases are likely driven by the opioid crisis as well as low vaccination rates among adults. CDC also reported that in 2017, there was a slight increase in overall mortality related to hepatitis B. Alarmingly, mortality rates increased for Asian Americans and Pacific Islanders (AAPI), who shoulder a disproportionate burden of chronic hepatitis B chronic hepatitis B infection. The 2017 death rate for AAPIs was over 5 times higher compared to other groups. Non-Hispanic Blacks also had increased mortality related to hepatitis B, possibly due to high rates of chronic hepatitis B in African immigrant communities. Currently, only 25% of adults are protected from hepatitis B. Resources are needed to increase adult hepatitis B vaccination in the U.S., to prevent new cases of this serious liver infection. “The newly released data confirm that while we have made strides in preventing hepatitis B, the trend of increasing acute hepatitis B cases in the U.S. continues. It is critical that we address hepatitis B as a serious consequence of the opioid crisis, by increasing activities and resources to improve vaccination, and ensuring that providers and public health professionals working in high-risk communities include hepatitis B education, testing and vaccination as part of their programming,” said Chari Cohen, DrPH, MPH, Senior Vice President at the Hepatitis B Foundation. “As we work towards hepatitis B elimination in the U.S., we must not forget the communities impacted the most by chronic hepatitis B infection,” said Kate Moraras, MPH, Senior Program Director, Hepatitis B Foundation. “It is disheartening to see continued disparities and increased deaths due to hepatitis B among AAPIs and African communities. We must improve hepatitis B testing and care for those chronically infected. Only through diagnosis, management and treatment can we save lives.” About Hepatitis B: Hepatitis B is one of the world’s most common infections and the primary cause of liver cancer, which is the second-leading cause of cancer death in the world. Two billion people (1 in 3) have been infected with the hepatitis B virus, more than 292 million are chronically infected, and almost 1 million people die each year from hepatitis B-related liver failure and liver cancer. In the U.S., up to 2.2 million are chronically infected - yet most do not know it. Without early diagnosis and intervention, one in four people living with hepatitis B will die prematurely from liver failure or liver cancer. The hepatitis B virus is transmitted through blood, unprotected sex, unsterile needles, and from an infected mother to her newborn due to blood exchange during delivery. Although hepatitis B is preventable and treatable, there is still no complete cure for this deadly liver infection. About the Hepatitis B Foundation: The Hepatitis B Foundation is the nation’s leading nonprofit organization solely dedicated to finding a cure for hepatitis B and improving the quality of life for those affected worldwide through research, education and patient advocacy. To learn more, visit www.hepb.org, read our blog at hepb.org/blog, follow us on Twitter @HepBFoundation, find us on Facebook at facebook.com/hepbfoundation or call 215-489-4900. # # #  

    https://www.hepb.org/news-and-events/news-2/hepatitis-b-foundation-calls-for-increased-resources-for-hepatitis-b-prevention-in-response-to-cdc-2017-surveillance-data-report/
  • Immigration and International Issues

    Some countries restrict residence visas based on blood test results from a medical examination that may include testing for hepatitis B and other health conditions. Hepatitis B discrimination based on a positive surface antigen test (HBsAg) is unfair and unnecessary, but these policies exist in many parts of the world. This may vary by country for students wishing to study abroad and people wishing to work or apply for extended stay visas or immigrate abroad.   Things to consider when considering living abroad: Do your homework! Check the immigration/emigration policies set by the government of the country where you wish to work, study and reside. This will entail searching the internet for country-appropriate websites and information. Employment agencies in your country of origin may also have information about the country where you wish to reside. Consider your employment skills. As an example, some countries may permit entry but deny employment to people wishing to work in healthcare. The World Hepatitis Alliance has member organizations residing in many countries globally. We would recommend contacting a local World Hepatitis Alliance member in the country of interest to learn more about local policies. You can find the member list and contact information here. Many people living with chronic hepatitis B contact the Hepatitis B Foundation wishing to work in the United Arab Emirates (UAE – including Abu Dhabi, Ajman, Al Fujayrah, Ash Sharique, Dubayy, Umm, Qaywayn) and other gulf coast countries.) The UAE has a strict policy in place. Visa screening rules apply to five specified categories: babysitters, domestic servants, nursery and kindergarten supervisors, workers at barber shops and hairdressing salons, health club workers, and workers at health facilities. Anyone testing HBsAg positive will be denied a work permit and will not be permitted to reside in the UAE. The UAE also re-tests for hepatitis B a year after entry to confirm that new residents are not infected. Individuals will be deported if they are found to be positive for hepatitis B. An immigration policy may exist that appears to deny extended stay visas or work permits to people living with chronic hepatitis B, but you can challenge this with a letter and health report from your doctor. Occasionally, the information is dated, and the case can be resolved favorably. Often there is a policy in place denying entry or work to people testing hepatitis B positive (HBsAg positive) that cannot be changed by the applicant. This policy change must come from the governing body of the country.   What to do if you are facing discrimination: What can you do if you live in a country that discriminates against those who have hepatitis B? Get involved! Please contact World Hepatitis Alliance member organizations and see how you can help to raise the profile of hepatitis B in your country and fight for the rights of those living with hepatitis B. More voices, more action! Below are of organizations that the Hepatitis B Foundation has relationships with that are working hard to change policy in their country. Contact them today and lend your support. Yellow Warriors Society of the Philippines Hepatitis Foundation of Ghana Chagro-Care Trust, Nigeria   If you are faced with discrimination due to hepatitis B, it is important to know your rights and to have information to support your case. You can use the information on our site to help advocate for yourself, report your experience with discrimination on the Hepatitis B Foundation's Discrimination Registry, or contact the Hepatitis B Foundation at discrimination@hepb.org or 215-489-4900 if you need additional assistance.   

    https://www.hepb.org/resources-and-support/know-your-rights/immigration-and-international-issues/
  • Know Your Rights

    Around the world, millions of people with chronic hepatitis B face discrimination that limits their dreams, education, careers, income and access to medicine. The stigma that persists is based on ignorance and it impacts millions around the world daily. Hepatitis B is simply not transmitted through casual contact, and should not prevent anyone from attending school, working, having a family, or traveling.  The Hepatitis B Foundation is working tirelessly to end the stigma and ensure that people with hepatitis B are afforded the same opportunities as everyone else. Our advocacy successfully made hepatitis B a protected condition under the Americans with Disabilities Act (ADA) in the United States. We also support programs to fight discrimination faced by people living with hepatitis B when applying to schools, jobs, or accessing affordable medicine. If you are faced with discrimination due to hepatitis B, it is important to know your rights and to have information to support your case. Use the information on our site to help advocate for yourself, or contact the Hepatitis B Foundation at info@hepb.org or 215-489-4900 if you need additional assistance.  Click links in the sidebar or below to learn more about your rights to: Health Insurance Costs Impacting Shoppers Living with Hepatitis B (2020) This report is a resource to help people living with hepatitis B make informed decisions when choosing a health insurance plan. It can also be shared with policymakers to inform them of potentially discriminatory benefit plan designs in various states. U.S. Schools and Education U.S. Employment U.S. Military U.S. Access to Medication Immigration and International Issues  

    https://www.hepb.org/resources-and-support/know-your-rights/