Support Groups

There are several good Internet Support Group Listservs dedicated to hepatitis B. These Lists provide emotional support and practical help for those living with hepatitis B. There are also organizations that can refer individuals to traditional ("land-based") support groups.

Internet Support Groups

Hepatitis B Information and Support List (HB-L)
This is the only adult support group for hepatitis B on the Internet. It is a well-supervised list with reliable information. All those affected by or concerned about hepatitis B are invited to participate.

HBV Adoption Support List
Adoptive or biological parents of children living with hepatitis B are invited to participate. This is a restricted list to protect the privacy of parents and children, and requires pre-approval by the list owners to join.

PKIDs Email Support List
Adoptive and biological parents of children living with chronic hepatitis B or C, and HIV are invited to participate. This is an unsupervised list sponsored by the national non-profit organization PKIDs.

Traditional Support Groups

NYC Chinatown Asian Liver Health Support Group
HBV awareness, education and support group in Chinese Language(Mandarin/Cantonese)
Meets first Tuesday of each month, 2:00 - 3:00 PM NY Public Library
33 East Broadway, 3rd Floor, New York, NY 10013
Patients welcome and refreshments provided
For more info: call Arline Loh (646) 962-4731 or ARL2005@med.cornell.edu

NYC Weill Cornell Medical Center
Hepatitis B Patient Support Group
HBV awareness, education and support group at upper east side of Manhattan Meets first Thursday of each month, 4:00 - 5:00 PM
1305 York Avenue (at 70th & York), 2nd Floor, New York, NY 10021
Patients welcome and refreshments provided
For more info: call Arline Loh (646) 962-4731 or ARL2005@med.cornell.edu

American Liver Foundation
1-800-Go-Liver
Although most support groups focus on hepatitis C, the statewide ALF chapters may be able to make referrals to groups that welcome hepatitis B patients.

Hepatitis Foundation International
1-800-891-0707
Although most support groups listed by this organization focus on hepatitis C, there may be groups that could be helpful to hepatitis B patients.

HepTrec
1-866-HepTrec
The Delaware Valley Hepatitis Treatment, Research and Education Center (HepTREC) provides support group information, training and prevention programs in the greater Philadelphia area.

Page last modified May 24, 2010