|
Patient
Support > Support Groups
Support Groups
There are several good Internet Support Group Listservs dedicated
to hepatitis B. These Lists provide emotional support and practical
help for those living with hepatitis B. There are also
organizations that can refer individuals to traditional ("land-based")
support groups.
Internet Support Groups
Hepatitis
B Information and Support List (HB-L)
This is the only adult support group for hepatitis B on
the Internet. It is a well-supervised list with reliable information.
All those affected by or concerned about hepatitis B are invited
to participate.
HBV
Adoption Support List
Adoptive or biological parents of children living with hepatitis
B are invited to participate. This is a restricted list to
protect the privacy of parents and children, and requires pre-approval
by the list owners to join.
PKIDs
Email Support List
Adoptive and biological parents of children living with chronic
hepatitis B or C, and HIV are invited to participate. This
is an unsupervised list sponsored by the national non-profit
organization PKIDs.
Traditional Support Groups
Philadelphia Chinatown Hepatitis B Patient Education Group
FREE HBV awareness, education and support group in Chinese Language(Mandarin)
Meets 3rd Tuesday of each month, 2:00 – 3:30 pm AmeriChoice Building,
1035 Race Street, Philadelphia, PA 19107 Patients and families welcome, refreshments provided
Contact: Dr. Gang Chen (215) 589-6361 or gang.chen@hepb.org
NYC Chinatown Asian Liver Health
Support Group
HBV awareness, education and support group in Chinese Language(Mandarin/Cantonese)
Meets last Thursday of each month, 2:00 - 3:00 PM NY Public Library
33 East Broadway, 3rd Floor, New York, NY 10013
Patients welcome and refreshments provided
For more info: call Arline Loh (646) 962-4731 or
ARL2005@med.cornell.edu
NYC Weill Cornell Medical Center
Hepatitis B Patient Support Group
HBV awareness, education and support group at upper east side of Manhattan Meets last Wednesday of each month,
2:00 - 3:00 PM
1305 York Avenue (at 70th & York), 2nd Floor, New York, NY 10021
Patients welcome and refreshments provided
For more info: call Arline Loh (646) 962-4731 or
ARL2005@med.cornell.edu
American Liver Foundation
1-800-Go-Liver
Although most support groups focus on hepatitis C, the statewide ALF chapters
may be able to make referrals to groups that welcome hepatitis B patients.
Hepatitis Foundation International
1-800-891-0707
Although most support groups listed by this organization focus on hepatitis C,
there may be groups that could be helpful to hepatitis B patients.
HepTrec
1-866-HepTrec
The Delaware Valley Hepatitis Treatment, Research and Education Center
(HepTREC) provides support group information, training and prevention programs
in the greater Philadelphia area.
Page last modified April 16, 2009
|
HBF Patient Information Booklet