|
About Us > Patient
Advocacy
Patient Advocacy
Meeting the needs of all those affected by hepatitis
B is an important priority of the Hepatitis B
Foundation. In order to help build a stronger
and more visible hepatitis B community, we initiated
the first-ever national hepatitis B patient conference
in 2001. This was made possible through
our ongoing partnership with the only
Online Hepatitis B Support Group. In addition,
we continue to provide expert testimony about
hepatitis B at both the state and national level.
B Informed Patient
Conference
We sponsor the only national
conference for those living with chronic
hepatitis B. Patients
and their loved ones, parents of children, and
health care providers all gather to share their
stories and information in a caring and supportive
environment. Learn
more.
Hepatitis B Information
and Support Listserv (HB-L)
We have
a strong partnership with the Hepatitis
B Info and Support List, which is the only hepatitis
B support group on the Internet. Together,
we help provide a focus for the hepatitis B
community. This is a well-supervised list
with more than 500 members who log on from
around the world to exchange information and
provide emotional support to one another. Co-owners
Steve Bingham and Sheree Martin are an excellent
resource for both the List and the HBF.
Expert Legislative
Testimony
Our medical and scientific
experts, and outreach staff regularly provide
expert testimony
about hepatitis B to state and federal legislators.
We have successfully advocated for funds to support
hepatitis B prevention, education and research
programs.
|