Hep B Blog

Ringing in a Happy, Healthy 2012 For Those Living with HBV

Out with the old bad habits and in with the new, healthy habits. The New Year is upon us and for those of us living with HBV; it’s time to make a commitment to habits that support a healthy liver.  Let’s start with New Year’s Eve – A sip of champagne to ring in the New Year? Yes!  Half a magnum of champagne to ring in the New Year… dangerous!

Let’s face it. Drinking alcohol and HBV do NOT mix.  Years of HBV results in liver disease progression. Drinking alcohol to excess also causes liver disease progression. The rate and degree of liver disease progression is not necessarily predictable and may vary with the individual. However, mix hepatitis B and alcohol and you have a deadly combination leading to more advanced liver disease progression.  Make the commitment in 2012 to stop drinking alcohol.

Do you smoke?  Why?  The warnings regarding the risks of smoking never cease.  If you smoke and have HBV, you increase the rate of your liver disease progression and you significantly increase your risk of liver cancer. Once again it’s the combination of HBV and the bad habit that increases your risk of liver cancer even more.  Smoking is bad for you and HBV is bad for you.  Make a commitment in 2012 to stop smoking.

Fatty liver disease and diabetes are on the rise. ALT levels may be elevated by your HBV or by fatty liver disease.  You don’t want either, so do your best to avoid foods that increase your risk for diabetes or fatty liver disease. Take a hard look at your diet.  Do grab food on the go?  Do you shop on the inside of the grocery store or the outside?  Do the food items you buy contain a list of ingredients you cannot pronounce?  Go back to basics. Shop on the outside of the store where the fresh vegetables, fruits and other fresh foods reside.  Make your own meals rather than buying ready-made. There is no specific diet for those living with hepatitis B, but a healthy diet is important. Eat fresh, healthy vegetables, fruits and lean meats.  Avoid “white” pastas and breads, and eat whole grains.  Avoid high fructose corn syrup and refined sugar.  Read the labels on the backs of the packages to compare your intake of sugar and fat. You may be swapping one for the other, which might be important if you are watching your sugar intake. Eat health, monounsaturated fats like olive oil, avocados, and nuts.  Avoid saturated fats such as butter, fatty meats, etc.  Spend a little time learning the healthy-diet basics and gradually implement changes into your diet and lifestyle.

Exercise really is good for you, but sometimes it’s tough to get in the groove. Just because you have HBV does not mean you should avoid exercise.  Exercise as you are able.  You will find that moderate exercise will actually make you feel better rather than worse.  HBF’s Senior Medical Adviser advises those recovering from an acute HBV infection should avoid bed rest unless specifically prescribed by their doctor. Getting up and about actually helps your liver and the recovery process. This does not mean you need to be training for a marathon, but exercise in moderation is good.  So find yourself an exercise partner, and go out for a walk, jog, or swim, or sign up for a Zumba class at your neighborhood gym.

So when you’re getting ready to make your list of New Years’ resolutions, be sure to set goals that are attainable.  You don’t have to quit smoking or drinking alcohol cold turkey.  This is a lifetime commitment. Make a realistic plan to taper off and stick to it.  Ask your doctor for advice, or find friends or family members that are also interested in making commitments to change.

Happy New Year to all!  Out with the old-bad habits, and in with the new, healthy habits for 2012!

Adopting a Special-Needs Child with Hepatitis B

William - Waiting child with HBV. Contact advocacy@anorphanswish.org for more information.

If you are considering the adoption of a special needs child, I would encourage you to consider adopting a child with Hepatitis B. Children with HBV are available for adoption around the globe. Remember that one third of the world’s population has been infected with HBV.  The transmission of HBV from mother to child during delivery process is very common in many parts of the world. HBV can be prevented in 95% of cases for those that are vaccinated and receive HBIG within 12 hours of birth, with the other two shots of the series to follow, but unfortunately these options are not available to many infants around the globe.  Because HBV is a silent infection, many moms are not even aware they have HBV, and few are screened and identified during pregnancy.

Adopting a child with HBV is very manageable. However, it is good to get educated before you move forward.  Kids with HBV may require treatment when they return home, although most do not. This will not be determined until your child arrives home and has a thorough work-up with a liver specialist.  Please don’t ask for additional testing of your child, as the additional needle sticks raise their risks for infectious disease.

Most children do not have symptoms with their HBV.  They appear perfectly healthy, and they are healthy with the exception of having the HBV virus circulating in them.  They sleep, eat and cry, just like any other baby, and they run, play, captivate and steal the hearts of their parents just like any other child.

Quite often treatment is not necessary for a child with HBV. They have high viral loads, which do make them infectious, but the good news is that the HBV vaccine is a requirement in nearly all states, and licensed day-care facilities. These elevated numbers sometimes worry parents, but the kids are just fine and it is merely a stage of the virus, which tends to occur children infected at birth or early on.  Kids rarely have symptoms and their liver enzymes and blood work are typically within range.   Some children seroconvert, or move into a quiescent, less infectious state on their own with no treatment, while others continue on in this steady state without any intervention other than bi-annual or annual lab work and a visit to a pediatric liver specialist.

However, some children do require treatment when they are young. This is not as common, and is determined by blood work that shows that the immune system is trying to attack the virus in the liver cells. This may sound frightening, but once again, the kids are rarely symptomatic.  Doctors may choose to treat a child in order to see if they can get the child to seroconvert, or move to a more benign stage of the virus’ lifecycle.  For young children, this may involve an immune modulator such as interferon or peginterferon , or in older children, or different circumstance, an oral antiviral.  As a parent, I have been through both, so I can tell you that the protocol is manageable.  There are pros and cons to each treatment protocol which you will want to discuss in detail with your pediatric liver specialist should treatment be recommended.

Believe it or not, one of the tougher decisions is figuring out how you want to handle your child’s personal information.  Often there is a stigma associated with HBV which is primarily borne of ignorance and lack of HBV awareness.   I admit that I had very little understanding of the virus when we came home with our daughter!   The tough part is deciding how you want to handle this information.  It’s a family decision, and until you decide how you want to treat it as a family, you are better keeping this information private.  I would highly recommend speaking with other parents that have experience, both good and bad, with the disclosure of their child’s HBV status.  There is a wonderful, on-line support group you might like to join to discuss the adoption of a child with HBV.

Living day to day with a child with HBV is simple. The biggest transition is learning to deal with preventive measures or general standard precautions, which we should all be following anyway!  All this really entails is making sure that all blood and body fluid spills and contacts are prevented by using a barrier between the bleeding person and you.  Blood spills are cleaned with a fresh, diluted bleach solution.  Should an exposure occur, prophylaxis should be given.  Here’s the thing… we should be doing this with EVERYONE and not just a known entity! It keeps everyone in your family infection free from all sorts of things!

How do you prepare to bring a child with HBV into your home?  It’s simple.  If everyone in your home has not been vaccinated against HBV and had titres checked, then they should do so.  The HBV vaccine is a safe and effective three shot series.  Four to six weeks following the last shot of the three shot series, you can ask that your doctor run quantitative anti-HBs to be sure that your titres are above 10.  If you have built adequate immunity to the virus through vaccination then you and your loved ones will be HBV free for life.  With a safe and effective vaccine, like the HBV vaccine, this is the way it should be!

So when you are considering adopting a special needs child, please consider a child with HBV. Even if you do not choose HBV as a special need, be sure to have your adopted child screened for hepatitis B. HBV is endemic in so many portions of the world. This is how we discovered our daughter’s infection. Had she not been screened, we would have likely never known her HBV status, and although this might not affect you on a daily basis, it is something that needs to be monitored by a pediatric liver specialist. In our case, our daughter needed treatment, but because there were no symptoms, I am grateful we had her screened upon her arrival home.

No matter where your children are grown – within your womb or another, having children truly is a leap of faith.  Keep an open mind. Adoption is a wonderful way to grow your family and choosing to adopt a special needs child with HBV is a great addition to your family.

Does Your Sex Life Interfere With Organ Donation? A Hepatitis B Perspective

Giving or receiving the gift of life through organ donation is truly a gift. This week’s story – “CDC’s proposed guidelines for transplants say two sex partners is too many for top-notch organ donors ” may well jeopardize the availability of this precious gift to those in need.

For those living with HBV, this dilemma is especially disheartening.  With organ donation highly unlikely due to their HBV status, those living with HBV also face the possibility of requiring a liver transplant due to end-stage liver disease or HCC.

Organs for donation don’t come easily.  These proposed guidelines are limiting.  The question is, are these guidelines even realistic?  Dr. Harry Dorn-Arias, a transplant surgeon at the Univeristy of Virginia told MSNBC, said it best: “With the new guidelines, every college student in America will be high-risk”. Perfectly healthy, young candidates may choose to waive their decision to donate their organs because the guidelines seem so… judgmental. They might not even consider the act of donation.

And who will be out there to ensure that the now smaller subset of potential donors isn’t lying, and who will update the information annually? Will the Department of Motor Vehicles (DMV) be quizzing you on your sexual activities when you choose one way or the other to check the organ donor box for your license? If you’re sixteen and standing there with your mom at the DMV, are you going to take a stand and not be an organ donor because you have multiple sex partners, and mom doesn’t even know you’re having sex?  (Just went through the whole DMV process, so it’s fresh in my mind).  What if you are completely monogamous, but your partner is not? Do you have high-risk organs due to association?  And what if you are considering a life-saving, living related donation for your wife, but you’re afraid to tell her you’ve had multiple sexual partners for the last 10 years of the marriage? If you’ve been lying the last 10 years, why stop now? What if you had a very active sex life, but settled into a happy monogamous relationship, but forgot to update your organ donor card?  Although there’s a little levity thrown in here, these scenarios are not that far-fetched.

When you are in need of an organ, and you are fortunate to find a match, you have to assume there will be risks involved in the process.  Naturally you want the safest organ available, but there is not the time or the medical testing available to screen for every medical conceivable complication that might result in a failed transplant. At some point there has to be a leap of faith. Personally I would choose the “high-risk” organ from a healthy 20 year-old with 5 sex partners last-year, over no organ at all.

It’s all about risks vs. benefits.  Slashing the pool of potential donors based on the number of sexual partners is riskier than having no choice from a much smaller, reduced pool filled with many of the same unknown variables.  The donor pool isn’t necessarily safer, it’s just smaller.

Organ donation truly is a gift. If you are living a life style that you know to be high-risk, or if you knowingly have a disease that will put a recipient at risk, then do not donate.  Otherwise, carry your organ donor card with pride and check the box “yes” next time you’re at the DMV.

Many Parents Request Delays in Vaccine Schedule -Why the HBV Vaccine is Important for Infants and Young Children

Last week’s report of a recent study shows that more parents are opting out or delaying some vaccines for their children, and the hepatitis B vaccine is one of those parents sometimes choose to skip or delay.  What is even more disappointing is that the majority of pediatricians polled were comfortable with an alternative HBV vaccine schedule for their young patients.

The unfortunate thing about HBV is that it is very effectively passed from an HBV infected mother to her child during the birth process. Children that are infected with hepatitis B at birth, or as a baby, have a 90% chance of being chronically infected for life.   Young children that are infected horizontally have up to a 50% chance of being chronically infected for life. Children living with HBV are typically highly infectious and very effective at unknowingly spreading the virus to little friends or family members. HBV is present in blood and body fluids and we all know how kids are fascinated by one anothers’ boo-boos, and half of them have some sort of rash or scrapes that are tough to keep covered at all times. The beauty of vaccination is that infants and little ones are protected when they are at day care and pre-school, and when they are playing with the neighborhood kids.  Protocols are in place, but accidents do happen and rules are not always followed. You may think your child’s world is HBV free, but but you may be wrong.  Is it worth the risk when there is a safe and effective vaccine available?

Later in life, HBV is effectively transmitted horizontally in the mode that is often associated with infectious disease – sexually.  We are all sexual beings and at some point sex will become part of our lives.  Will you be thinking about having your teen or college student vaccinated, or will you be like most of us and too busy to even think about it?  What about when your teen or college student comes home with a tattoo or body piercing they got at a bargain tattoo/piercing parlor?  No one likes to think about their children making impulsive decisions, but the reality is that most do.  They have lapses in judgment and they make mistakes. A parent can only control so much, but why not eliminate the chance of HBV infection later in life?

You might think you will deal with HBV if you are faced with it. Even if your child is infected, or playing with a child that is infected, there will be no notable symptoms.  That’s why they call it a “silent infection“. Your liver is a non-complaining organ so symptoms rarely appear unless your liver is in distress. HBV will likely go unnoticed for decades unless it is picked up with routine blood work, during a blood donation, or a blood screening. That doesn’t mean liver damage is not occurring over decades of infection.

Our world keeps getting smaller, and travel to exotic lands is common. The U.S. is a melting pot of countries around the globe – many where HBV is prevalent.  Do you know that 2 billion people in the world have been infected with hepatitis B and that 400 million are living with a chronic, life-long infection? That is 1 out of 3 people in our world that have had an HBV infection!  There are good treatments out there, but there is no complete cure.  Many live long, lives, but lifelong HBV puts you at high risk for advanced liver disease, liver cancer and death.  The stigma associated with HBV leaves many throughout the world unemployable, and even those in the U.S. may suffer from discrimination and judgment by others due to their disease.

People write to HBF and tell us their HBV story.  Many have no idea how they were infected.  It is not casually transmitted, but it is an infectious disease – 50 to 100 times more infectious than HIV and 5 to 10 times more infectious than HCV.  The U.S. is fortunate to have a vaccine available to all children born in this country. Parents worldwide would give anything to have their infant vaccinated to prevent a lifetime with HBV.  Some countries have HBV vaccine shortages.  Many cannot afford the vaccine, and many are unaware of the vaccine until they learn they are infected. In the U.S. we have an opportunity to prevent a life-long infection with HBV with a simple vaccine.  Please don’t choose to delay or omit the hepatitis B vaccine from your child’s vaccine schedule.